The Mitchell and Friends Foundation

The Mitchell and Friends Foundation exists to raise awarness of Mitchell Syndrome (Acox1 gain-of-function)--an ultra-rare and deadly neurological disease first identified in 2017. Mitchell Syndrome was named after Mitchell Herndon, the first identified person with Mitchell Syndrome, who died in 2017 after a valiant struggle with his illness. As of May 2024, the Foundation has located 30 other patients world-wide. We exist to support these families and children with Mitchell Syndrome and to raise money for research at Washington University and Houston Methodist Hospital into possible treatments and cures.