Say Sarcoidosis Patient Education Event!

Say Sarcoidosis Patient Education Event!

Come join us at the Say Sarcoidosis Patient Education Event on August 17, 2024

By Johns Hopkins Sarcoidosis & Patient Advisory Board

Date and time

Saturday, August 17 · 8am - 4:30pm EDT

Location

1800 Orleans St

1800 Orleans Street Baltimore, MD 21287

Agenda

8:00 AM - 8:30 AM

Registration

Sarcoidosis 101: What We Know Right Now - Dr. Catherine Bonham

Dr Bonham will present an overview of the most current understanding of sarcoidosis, including causation theories, possible genetic links, and patient statistics as well as organ-by-organ involvement...

Beyond Prednisone: Borrowing Treatments from Other Diseases - Dr. Dan Culver

Sarcoidosis treatment often includes therapies used in a variety of other inflammatory diseases. Dr Culver will review which treatments have been effective, both for multisystem disease as well as th...

Clinical Trials: Patient Perspective & Current Open Trials - Noopur Singh

The session will include a patient with sarcoidosis who will describe their experience participating in a clinical trial and the industry representative will provide an overview of the clinical trial...

Black Women’s Sarcoidosis Study w/ Guideposts for Patients - Dr. Yvette Cozier

The Black Women’s Health Study has been tracking patients for over 25 years. Dr Cozier will provide an overview of sarcoidosis study findings, including practices that have proven helpful to patients...

3 Things to Remember for Patients Living with Sarcoidosis - Dr Jinny Tavee

To help manage our sarcoidosis symptoms and disease-related stress, Dr Tavee will inspire us to practice wellness in the areas of nutrition, exercise, mindfulness, sleep, gratitude, relationships, an...

Finding a Civilized Balance Empowering Patients To Manage Care- Dr Athol Wells

Dr. Wells describes each patient with sarcoidosis whose life is not endangered by the disease as having a unique “package of feeling unwell” (such as cough, tiredness, fatigue, and joint aches), but ...

Expert Panel Question & Answer Session

Sarcoidosis experts will field patient questions in a moderated format.

About this event

  • 8 hours 30 minutes

Say Sarcoidosis Patient Education Event

Come join us at the Say Sarcoidosis Patient Education Event, a one-of-a-kind opportunity to learn and connect with fellow sarcoidosis patients. This in-person event will be held at the Chevy Chase Auditorium in the Johns Hopkins Hospital, located at 1800 Orleans St in Baltimore MD. Get ready for a day filled with informative sessions led by experts in the field, covering a wide range of topics related to sarcoidosis. Whether you're a newly diagnosed patient or have been living with the condition for years, this event is designed to provide valuable insights, support, and resources. Don't miss out on this chance to expand your knowledge, engage with others who understand your journey, and empower yourself to manage sarcoidosis effectively. Mark your calendar and join us for this educational event!


Learn more @ www.saysarcoidosis.org


*** To support our FREE patient event & the SaySarcoidosis awareness campaign, visit our Aspire page to donate: https://aspire.hopkinsmedicine.org/project/41652



Tickets

  • In-person attendance: 250 tickets available
  • Virtual attendance: 1000 tickets available

NOTE: In-person tickets limited to two per patient, ages 16 and up. If you have special needs or accommodations, please contact us for specific requests or additional information

Tickets

Tags

Organized by

Johns Hopkins Sarcoidosis & Patient Advisory Board