Primary Immunodeficiency Education Day

The Division of Immunology, along with the Division of Oncology and its Blood and Marrow Transplant Program, invites parents and caregivers of children impacted by a primary immunodeficiency to a special half-day program just for you. Come learn about the latest guidelines for long-term follow-up, hear other families’ experiences, and connect with people who have walked your journey.

This program is open to parents, caregivers and patients over the age of 14 years.

Check-in starts at 7:45 a.m.

Please RSVP by April 7, 2019.

Funded by the Jeffrey Modell Foundation WIN Program

Agenda

• 7:45 – 8:30 a.m. — Continental Breakfast (yogurt, fruit)
• 8:30 – 9:30 a.m. — Keynote Speaker: Greg Hedler, LCSW
• 9:30 – 10:15 a.m. — SCID Late Effects: Jennifer Heimall, MD
• 10:15 – 10:30 a.m. — Break (Coffee and Tea available)
• 10:30 – 11:30 a.m. — Expert Panel - Jennifer Heimall, MD
  IVIG Immunoglobulin: Marianne Anzabi, RN, CRNP
  Survivorship: Wendy Hobbie, RN, MSN, CRNP, FAAN
  Education: Colleen Cerebe, BA
  
• 11:30 – 12:15 p.m. — Art Therapy Session: Abbien Crowley, MA ATR-BC LPC
• 12:15 p.m. – 1 p.m. — Parent Panel - Experience of being diagnosed, getting transplant, and life after transplant. Represented Diagnosis: SCID, CGD & HLH
• 1 p.m. — Luncheon (vegan options available)
  

Questions?

If you have any questions or for more information, please contact Houston Roberson at 267-426-8114 or robersonh@email.chop.edu.