Integrating Congenital Conditions into Maternal and Child Health Programs

On a mission to save children’s livesEvery child deserves the opportunity to grow and thrive. Together, we must work toward a world where all children have access to high-quality heart care. Children’s HeartLink, a Minnesota-based non-profit founded in 1969, works to save children’s lives by improving pediatric heart care programs in Asia and South America. Here’s how we do it:Buildlocal-level capacity for pediatric cardiac care through long-term partnerships and robust monitoringOptimizepatient care using education and a train-the-trainer modelAdvocatefor better access to care with governments and stakeholdersSustainaccess to quality care through Centers of ExcellenceL﻿earn more about us.

Children's HeartLink

Join us to collaborate with experts and advocates in championing transformative change for those impacted by congenital conditions.

John Knox International Center

Building Healthy Futures: Integrating Congenital Conditions into Maternal and Child Health ProgramsRegistration for our in-person event is now closed. Please register to join us virtually or email katie@childrensheartlink.org Virtual registration: https://us06web.zoom.us/webinar/register/WN_2Xsak6hpRGajf0mybmk5jg#/registrationAt WHA 77 Member States adopted a resolution responding to slowing progress in tackling maternal, newborn, and child mortality and for the first time called out congenital conditions as a key driver of childhood mortality that needed to be addressed. With childhood mortality reduction efforts stagnating, now is a critical moment for NGOs, patient and family advocates and policy makers to unite and advocate for the investment and integration of congenital conditions into maternal and child health programs.We invite you to join us for a dynamic discussion with patient and family advocates, leading NGOs, government representatives, and WHO experts who will highlight the work the WHO has been doing to bring more attention to congenital conditions, including estimating the global burden of birth defects and developing a new policy framework for newborn screening, diagnosis and management of congenital conditions. This event will make the case that now is the time to ensure that children born with congenital conditions survive and thrive.Can't join us in person? Join us virtually: https://us06web.zoom.us/webinar/register/WN_2Xsak6hpRGajf0mybmk5jg#/registration

Agenda

Welcome & Introductions  

Reaching Childhood Survival Targets:  Addressing Congenital Conditions

The Role of Governments in Addressing Congenital Conditions  

Patient Advocates: Creating Awareness and Accountability

WHO Framework on Newborn Screening, Diagnosis, Management and Treatment 

Integrating Congenital Conditions in MNCH Programming and Advocacy

Audience Q&A

Closing Remarks

Untitled agenda

Welcome & Introductions

Reaching Childhood Survival Targets for SDG 3 Addressing Congenital Conditions

Role of Patient Advocates in Creating Awareness & Accountability 