A Night 4 Noah

Join us in a fun-filled dinner & concert with delicious bites, drinks, live music, dancing, silent auction, and Gopro raffle to benefit Project Alive.

The funds provided by this event will help fund the clinical trial at Nationwide Children's Hospital which has high hopes of curing Noah and his friends from Mucopolysaccharidosis II (MPS 2).

Sponsor packages are available!

Silver Sponsorship ($250) - includes 2 complementary tickets and event recognition on printed material.

Gold Sponsorship ($500) - includes 4 complementary tickets, recognition at the event, company logo and name on printed material.

Platinum Sponsorship ($1000) - includes 4 complementary tickets for the VIP table, company logo on a banner, recognition at the event, company logo and name on printed material.

Purchase of sponsorship packages can be mailed by check or through Eventbrite. E-mail aywon.nguyen@gmail.com for details.

Look forward in seeing you there!

This event can also be found on Facebook:

FAQs

Are there ID or minimum age requirements to enter the event?

All ages are welcome, however, alcoholic beverages consumed by 21+ only

What are my transportation/parking options for getting to and from the event?

There is plenty of parking. Please, drink responsibly and take Uber/Lyft if needed.

How can I contact the organizer with any questions?

Email aywon.nguyen@gmail.com

What's the refund policy?

Tickets are nonrefundable.

What's the dress code?

Business casual.

What is Project Alive?

Project Alive is a 501(c)(3) nonprofit corporation with a tax ID 46-4617970 with a mission to cure Hunter Syndrome / Mucopolysaccharidosis II through research and advocacy.

www.projectalive.org

facebook.com/projectalive

What is Hunter Syndrome?

Hunter Syndrome is a rare and fatal lysosomal storage disease affecting 1 in 100,000 boys around the world. Children like Noah cannot produce a certain enzyme used to break down cellular waste. The accumulation of this waste over time leads to progressive damage throughout their little bodies. Boys with Hunter Syndrome are often born normally and live happily undetected until physical and neurological problems arise between 2 to 4 years old. These boys then begin to regress physically and mentally. Some may describe it as childhood Alzheimer’s disease. Most gradually lose the ability to walk, to talk, to eat, and ultimately the ability to live. We would be lucky to have Noah live through his teens. But there is hope. Watch the 2 min video about Hunter Syndrome & Gene Therapy.

http://www.projectalive.org/hunter-syndrome/