TBCK Conference 2026: Snowflakes in July

Welcome to the TBCK Conference 2026: Snowflakes in July!

Get ready for an unforgettable in-person experience where things get cool even in the summer! Mix, mingle, and dive into fascinating talks about TBCK Syndrome and share the realities of rare disease life. It's the perfect spot to connect with friends old and new, all while enjoying the unique vibe of TBCK Snowflakes in July. Like snowflakes, our TBCK Warriors are each entirely unique. We celebrate them while we gather to together to find answers, accelerate patient-led research, advocacy, education, and create a dynamic system of support.

Stay close to the action by booking in our hotel block at the Hyatt Regency Aurora-Denver Conference Center 13200 E 14th Pl, Aurora, CO P: 720.925.5328 using this link: https://www.hyatt.com/events/en-US/group-booking/DENHY/G-7FCR

When you register and buy tickets, you will also have an opportunity to explore ways to order t-shirts (deadline June 15, 2026) and/or donate to our Ready for Research Initiative!

We also welcome you to join us for the Black Ties for Rare Gala to celebrate rare disease dressed in our best. You can find tickets here: https://www.eventbrite.com/e/black-ties-for-rare-gala-2026-tickets-1983497714057?aff=oddtdtcreator