Unheard Stories

The New York City Hemophilia Chapter (NYCHC) is a non-profit 501(c)3 organization incorporated in 2008 to address the needs of the bleeding disorder community in the greater NYC area. NYCHC's mission is to foster a sense of community amongst people affected by bleeding disorders, and to assist them and their families through information, education, advocacy, shared experiences and mutual support.

New York City Hemophilia Chapter

Sometimes, people in our community feel unheard. We're providing a platform for you to speak.

As people with a rare bleeding disorder, many in our community already share a lot in common. You sometimes feel different, left out, or unheard. Having a bleeding disorder has probably caused unique challenges or situations in your life that people outside of our community may struggle to understand. We want to help you speak up and share your story.On Thursday, August 5 at 6 PM, we will host our second Unheard Stories event. We’ll provide the virtual safe space where community members like you can share your story. Speakers will have roughly 5 to 10 minutes to share any story they'd like. We'll also work with you beforehand to plan out your story. Sharing these stories can be a powerful experience for both the speaker, and the audience listening to the story. Want to see what this event is all about? <a href="https://www.nyhemophilia.org/stories/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Watch the three stories that were shared at our first Unheard Stories event by clicking here</a>.These stories can help connect members of our community around shared experiences or receiving support for the stories that are shared.After these stories are told, we will debrief as a group to see where these stories connect to your life and how you can support others facing similar challenges.Our three speakers will be Mily Cepeda, Eliot Weinstein, and Miguel Ferrer. Read an overview of their stories below: <ul><li>Miguel is an extrovert who loves to express himself through spoken languages. Miguel will share stories of how he found his "community" during the pandemic when we were unable  to gather in-person.</li><li>Eliot will share a story of finding a light within himself and how a horse in a pocketbook could mean so much.</li><li>Mily's father had hemophilia and taught her the basics of dance and boxing. He promised Mily he would be there to dance with her on her Sweet 16. He kept that promise. Mily will share her story about becoming an advocate for the hemophilia community in order to keep her father's spirit alive and to be a role model for her son.</li></ul>

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Unheard Stories

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