Science and Research Update: Symptom Surveillance After Hemispheric Pediatric Epilepsy Surgery

Pediatric Epilepsy Surgery Alliance

Join us for an update on tracking symptoms post hemispheric surgery

Hotel Indigo Los Angeles Downtown, an IHG Hotel

<h3>Science and Research Update: Symptom Surveillance After Hemispheric Pediatric Epilepsy Surgery</h3><h3> </h3>Join us for an informative session where experts will discuss the latest findings on monitoring symptoms post hemispheric pediatric epilepsy surgery. This in-person event is a great opportunity to stay updated on advancements in the field.This is a special research initiative of the Pediatric Epilepsy Surgery Alliance to develop recommendations for symptom surveillance and screening after hemispheric pediatric epilepsy surgery. PLEASE NOTE: As a small nonprofit organization, our resources are limited, and accurate attendance numbers are crucial for effective planning, especially regarding meals. We kindly request that you RSVP as soon as possible and only if you are certain you will join us.<h4> </h4>

HOTEL INDIGO - METROPOLITAN ROOMAGENDA6:30 PM. Informal reception7:00 PM. Dinner and presentationsModerator: Dr. George Ibrahim, Abe Bresver Chair in Functional Neurosurgery, The Hospital for Sick ChildrenWelcome address: Initiative Co-Lead: Dr. Taylor Abel, Chief of Pediatric Neurosurgery, UPMC Hospital of PittsburghPresenters:Auditory: Dr. Frank Musiek, former director, Neuroaudiology Lab at the University of ArizonaBehavior and Speech: Dr. Mary Lou Smith, Senior Associate Scientist, The Hospital for Sick KidsVision: Dr. Linda Lawrence, Assistant Clinical Professor of Ophthalmology, University of KansasEndocrine: Dr. Phil Zeitler, section head, Endocrinology, Children's Hospital of ColoradoMotor: Dr. Robert Kay, Division Chief of Orthopedic Surgery, Children's Hospital of Los AngelesHydrocephalus: Dr. Aria Fallah, Clinicial Director of Pediatric and Adult Epilepsy Surgery, UCLALiteracy and Academic Achievement: Dr. Joanna Christodoulou, , Director, Brain Education and Mind Lab, MGH Institute of Health ProfessionsWe are grateful to our working groups for their months of hard work on this important initiative. Initiative Co-Leads:Dr. <a href="https://www.mottchildren.org/profile/4396/nancy-allison-mcnamara-md" title="https://www.mottchildren.org/profile/4396/nancy-allison-mcnamara-md" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Nancy McNamara</a>, Co-Director, Pediatric Epilepsy Program, C.S. Mott Children’s HospitalDr. <a href="https://www.neurosurgery.pitt.edu/people/taylor-abel" title="https://www.neurosurgery.pitt.edu/people/taylor-abel" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Taylor Abel</a>, Chief, Pediatric Neurosurgery, UPMC Children’s Hospital of PittsburghResearch Coordinator: <a href="https://www.linkedin.com/in/emily-harford-4817075a/" title="https://www.linkedin.com/in/emily-harford-4817075a/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Emily Harford</a>, SLP, Clinical Research Coordinator, UPMC Children’s Hospital of PittsburghPatient Voice Lead: <a href="https://epilepsysurgeryalliance.org/about/about-us/our-team/monika-jones-jd-visionary-founder-and-ceo/" title="https://epilepsysurgeryalliance.org/about/about-us/our-team/monika-jones-jd-visionary-founder-and-ceo/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Monika Jones</a>, JD, Executive Director, Pediatric Epilepsy Surgery Alliance <h3>Vision</h3>Domain Lead: Dr. <a href="https://www.researchgate.net/profile/Linda-Lawrence-3" title="https://www.researchgate.net/profile/Linda-Lawrence-3" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Linda Lawrence</a>, opthalmologist, Salina Regional Health CenterWorking Group Members: Dr. <a href="https://live-behrmannlab-pitt.pantheonsite.io/" title="https://live-behrmannlab-pitt.pantheonsite.io/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Marlene Behrmann</a>, Director, Behrmann Lab, University of Pittsburgh; Dr. Michael Granovetter, pediatric neurology fellow, NYU; Dr. <a href="https://www.gosh.nhs.uk/our-people/staff-z/sian-handley/" title="https://www.gosh.nhs.uk/our-people/staff-z/sian-handley/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Sian Handley</a>, specialist clinical scientist, Great Ormond Street Hospital for Children, Dr. <a href="https://researchers.masseyeandear.org/details/282/corinna-bauer" title="https://researchers.masseyeandear.org/details/282/corinna-bauer" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Corinna Bauer</a>, Director, Lab for Neuroimaging and Vision Science, Massachusetts General Hospital; Dr. <a href="https://bowerslab.eye.hms.harvard.edu/alexbowers" title="https://bowerslab.eye.hms.harvard.edu/alexbowers" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Alex Bowers</a>, Associate Scientist, Schepens Eye Research Institute, Harvard University; Dr. <a href="https://www.chla.org/profile/melinda-chang-md" title="https://www.chla.org/profile/melinda-chang-md" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Melinda Chang</a>, opthalmologist, Children’s Hospital of Los Angeles; Dr. <a href="https://www.chp.edu/our-services/rare-disease-therapy/doctors-and-staff/ken-nischal" title="https://www.chp.edu/our-services/rare-disease-therapy/doctors-and-staff/ken-nischal" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Kanwal Nischal</a>, Chief, Division of Pediatric Opthalmology, Strabismus, UPMC Children’s Hospital of Pittsburgh <h3>Auditory</h3>Domain Lead: Dr. <a href="https://slhs.arizona.edu/person/frank-musiek-phd-ccc" title="https://slhs.arizona.edu/person/frank-musiek-phd-ccc" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Frank Musiek,</a> former Director, Neuroaudiology Lab, University of ArizonaWorking Group Members: Dr. <a href="https://auth.academia.edu/VivianIliadou" title="https://auth.academia.edu/VivianIliadou" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Vivian Iliadou</a>, Professor of Psychoacoustics, Aristotle University; Dr. <a href="https://ukhealthcare.uky.edu/advanced-practice-providers/jennifer-shinn#:~:text=Jennifer%20Shinn%20is%20a%20Professor,deficits%20in%20children%20and%20adults." title="https://ukhealthcare.uky.edu/advanced-practice-providers/jennifer-shinn#:~:text=Jennifer%20Shinn%20is%20a%20Professor,deficits%20in%20children%20and%20adults." target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Jennifer Shin</a>, Chief of Audiology, Univeristy of Kentucky; Dr. <a href="https://www.researchgate.net/scientific-contributions/Parmenion-P-Tsitsopoulos-38897466" title="https://www.researchgate.net/scientific-contributions/Parmenion-P-Tsitsopoulos-38897466" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Parmenion Tsitsopoulos</a>, Professor of Neurosurgery, Aristotle University of Thessaloniki <h3>Mobility and Orthopedic</h3>Domain Leads: Dr. <a href="https://www.adventhealth.com/find-doctor/doctor/raymund-woo-md-1205862745" title="https://www.adventhealth.com/find-doctor/doctor/raymund-woo-md-1205862745" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Raymund Woo</a>, Medical Director, Pediatric Orthopaedic Surgery, AdventHealth for Children, and Dr. <a href="https://www.tc.columbia.edu/faculty/ag275/" title="https://www.tc.columbia.edu/faculty/ag275/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Andrew Gordon</a>, Director, Center for Cerebral Palsy, Teacher’s College at Columbia;Working Group Members: Dr. <a href="https://www.chla.org/profile/robert-m-kay-md" title="https://www.chla.org/profile/robert-m-kay-md" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Robert Kay</a>, Division Chief, Department of Chief of Orthopaedic Surgery and Medical Director of The Children’s Orthopaedic Center at Children’s Hospital Los Angeles; Dr. <a href="https://www.nationwidechildrens.org/find-a-doctor/profiles/reid-c-chambers" title="https://www.nationwidechildrens.org/find-a-doctor/profiles/reid-c-chambers" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Reid Chambers</a> <h3>Endocrine</h3>Domain Lead: Dr. <a href="https://www.childrenscolorado.org/doctors-and-departments/physicians/z/phil-zeitler/" title="https://www.childrenscolorado.org/doctors-and-departments/physicians/z/phil-zeitler/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Phillip Zeitler</a>, Section Head, Endocrinology, Children’s Hospital of ColoradoWorking Group Member: Dr. <a href="https://www.childrenshospitalvanderbilt.org/doctors/simmons-jill" title="https://www.childrenshospitalvanderbilt.org/doctors/simmons-jill" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Jill Simons</a>, Professor of Pediatric Endocrinology, Vanderbilt University Medical Center <h3>Hydrocephalus</h3>Domain Lead: Dr. <a href="https://www.uclahealth.org/providers/aria-fallah" title="https://www.uclahealth.org/providers/aria-fallah" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Aria Fallah</a>, Chief, Pediatric Neurosurgery, Mattel Children’s Hospital at UCLAWorking Group Members:Dr. <a href="https://www.seattlechildrens.org/directory/jason-scott-hauptman/" title="https://www.seattlechildrens.org/directory/jason-scott-hauptman/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Jason Hauptman</a>, Chief of Neurosurgery, Phoenix Children’s Hospital, Dr. <a href="https://childrenswi.org/physician-directory/l/lew-sean-m" title="https://childrenswi.org/physician-directory/l/lew-sean-m" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Sean Lew</a>, Chief, Pediatric Division of Neurosurgery, Children’s Hospital of Wisconsin, Dr. <a href="https://www.luriechildrens.org/en/doctors/lam-sandi-k/" title="https://www.luriechildrens.org/en/doctors/lam-sandi-k/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Sandi Lam</a>, Division Chief, Neurosurgery, Ann and Robert H. Lurie Children’s Hospital; Dr. <a href="https://med9.at/team/spezialist/dr-christian-dorfer" title="https://med9.at/team/spezialist/dr-christian-dorfer" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Christian Dorfer</a>, Vice Chair, Neurosurgery, Medical University of Vienna, Dr. <a href="https://www.nicklauschildrens.org/find-a-physician/physician-details/en/1750861472/shelly-wang-neurosurgery" title="https://www.nicklauschildrens.org/find-a-physician/physician-details/en/1750861472/shelly-wang-neurosurgery" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Shelly Wang</a>, neurosurgeon, Nicklaus Children’s Hospital <h3>Behavior and Speech</h3>Domain Lead: Dr. <a href="https://www.hss.caltech.edu/people/lynn-k-paul" title="https://www.hss.caltech.edu/people/lynn-k-paul" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Lynn Paul</a>, Director of the Chen Participant Center, Chen Institute for Neuroscience, CaltechWorking Group Members: Dr. <a href="https://www.kennedykrieger.org/patient-care/faculty-staff/cynthia-salorio" title="https://www.kennedykrieger.org/patient-care/faculty-staff/cynthia-salorio" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Cynthia Salorio</a>, Director, Department of Neuropsychology, Kennedy Krieger Institute; Dr. <a href="https://www.utm.utoronto.ca/psychology/people/mary-lou-smith" title="https://www.utm.utoronto.ca/psychology/people/mary-lou-smith" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Mary Lou Smith</a>, Senior Associate Scientist, Neurosciences &amp; Mental Health, SickKids Research Institute; Dr. <a href="https://www.uclahealth.org/providers/patricia-walshaw" title="https://www.uclahealth.org/providers/patricia-walshaw" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Patricia Walshaw</a>, Director of the Neurobehavioral Epilepsy Program at UCLA, Dr. <a href="https://www.uclahealth.org/providers/patricia-walshaw" title="https://www.uclahealth.org/providers/patricia-walshaw" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Madison Berl</a>, pediatric neuropsychologist, Children’s National, <a href="https://med.umich.edu/pdf/speech-language-staff.pdf" title="https://med.umich.edu/pdf/speech-language-staff.pdf" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Samantha Kliman</a>, MA, CCC, speech pathologist, University of Michigan Health; <a href="https://med.umich.edu/pdf/speech-language-staff.pdf" title="https://med.umich.edu/pdf/speech-language-staff.pdf" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Hannah Ammonds</a>, MA-CCC, speech pathologist, University of Michigan Health <h3>Literacy and Academic Achievement</h3>Domain Lead: Dr. <a href="https://www.mghihp.edu/ihp-directory/joanna-christodoulou-edd" title="https://www.mghihp.edu/ihp-directory/joanna-christodoulou-edd" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Joanna Christodoulou</a>, Director, Brain Education and Mind Lab, MGH Institute of Health ProfessionsWorking Group Members: <a href="https://www.mghihp.edu/ihp-directory/amy-maguire-ms" title="https://www.mghihp.edu/ihp-directory/amy-maguire-ms" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Amy Maguire</a>, CCC-SLP, speech and language pathologist, MGH Institute of Health Professions. <h3>Ethics and Consent</h3>Domain Lead: Dr. <a href="https://www.sickkids.ca/en/staff/i/george-ibrahim/" title="https://www.sickkids.ca/en/staff/i/george-ibrahim/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">George Ibrahim</a>, Abe Bresver Chair in Functional Neurosurgery, Hospital for Sick Children <h3>Care Coordination and Integration</h3>TBD <h3>Clinical Symptom Assessment Tool Development</h3>Dr. Jojo Yang, Director, Pediatric Epilepsy Monitoring Unit, North Carolina Women's And Children's Hospital Thank you to UCB and DIXI Medical for sponsoring this meeting. From our 2023 satellite meeting:

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Science and Research Update: Symptom Surveillance After Hemispheric Pediatric Epilepsy Surgery

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