Caring for a child or adult with medical complexity is deeply meaningful and often isolating. Know Rare invites you to a special virtual screening of the powerful documentary Unseen: How We’re Failing Parent Caregivers & Why It Matters, followed by a live Q&A with the film’s producer, Amanda Dyer.
About the Film:
Unseen explores the real-life experiences of parent caregivers raising children and adults who are disabled or medically complex. Through personal video diaries and interviews with experts, the film highlights the exhaustion, love, and resilience of caregiving families — and the urgent need for societal support.
Can’t join live?
No worries! You can still access the film during the on-demand viewing window, October 26–29. We will send out the link to watch on demand to those who RSVP.
About Know Rare
Know Rare is a platform dedicated to elevating the voices and experiences of people living with rare diseases and complex medical conditions, and the caregivers who support them. Founded by Nina and Jake Wachsman, Know Rare connects patients and families to research opportunities, educational resources, and community support. Our HealthStory AI app empowers users to journal and share their health journeys, helping them to improve their care, understand their conditions, advocate for themselves, and advance rare disease research.
Learn more, get involved, and follow us on social media:
Website: www.knowrare.com
Instagram: @knowrare
Facebook: @knowrare1
Twitter/X: @knowrare
Contact: help@knowrare.com
