The CRBF Foundation
The Curing Retinal Blindness Foundation (CRBF) is a parent-led, 501(c)(3) nonprofit laser-focused on finding treatments and cures for CRB1 retinal disease—a rare genetic cause of childhood blindness. Founded in 2011 by families who refused to accept “there’s no hope,” CRBF has become a globally recognized leader in rare eye disease research, advocacy, and community-driven impact.
Our foundation has funded and/or helped launch over 50 CRB1-related research projects worldwide, helped secure a $1.25M NIH grant to accelerate the first-ever clinical trial for CRB1, and made U.S. legislative history with the first Congressional resolution submitted in braille (H.Res. 625). We also delivered testimony that helped bring Luxturna—the first FDA-approved gene therapy for a blinding disease—to market.
CRBF’s bold vision is powered by passionate families, researchers, and supporters like you. With every donation, we move closer to treatments that could restore or preserve vision for children and adults impacted by CRB1. Hope is here—and with your support, a cure is closer than ever.