Stitching Strength

Stitching Strength: An Evening of Hope and Innovation in the Fight Against ALS

Join us for an inspiring late afternoon dedicated to hope, innovation, and community in the fight against ALS (Amyotrophic Lateral Sclerosis).

We're honored to present a special screening of "Stitching Strength", a powerful 45-minute documentary created by Dr. Richard Bedlack, Director of the Duke ALS Clinic and one of the world's leading ALS specialists.

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About the Film

"Stitching Strength" offers a moving and profound look into Dr. Bedlack's unconventional, patient-centered approach to ALS care. It celebrates the individuality and dignity of those living with ALS through poignant stories of personalized decision-making, hopeful exploration of treatments, and the transformative impact of compassionate, out-of-the-box strategies.

As shared in a recent ALS United event recap, similar screenings have left attendees feeling deeply educated, comforted, and renewed in their commitment to challenging the status quo—fueled by curiosity, empathy, and a shared drive to instill real hope.

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Live Q&A with Dr. Richard Bedlack

Following the screening, Dr. Bedlack will lead an engaging live Q&A session, offering a rare chance to connect directly with this renowned expert in ALS research and care.

Topics will include:

• Practical ways to foster hope in patients and families.
• Emerging therapies and promising research.
• Strategies for stabilizing key ALSFRS-R scores.
• Ways to connect with vital research opportunities—including the National ALS Registry, ALSUntangled initiatives, and CRiALS studies.

Whether you're a patient, caregiver, healthcare professional, advocate, or simply passionate about ALS awareness, this event promises meaningful insights, heartfelt connections, and a collective impact across the Philadelphia-Baltimore region.

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Words of Hope from Dr. Richard Bedlack

Dr. Bedlack reminds us: "I am careful about the words I choose."

• Instead of "Prepare for the worst news. You need to get your life in order.", he reminds us to "Hope for the best. You need to live and define more of your life."
• Instead of "You have 2-3 years to live.", he says "1/3 of patients can be disabling and have more whole years to live."
• "This disease can be a nonfatal disease. 10% of patients live 10 years or more."

Through his hopeful language and groundbreaking approach, Dr. Bedlack invites us to reimagine what’s possible for those living with ALS.

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About the Event

This event is free and open to the public, but space is limited. RSVP today to secure your seat!

Whether attending alone, with your team, or alongside patients and families, your presence will help maximize the reach of Dr. Bedlack's message.

👉 Reserve your spot today!

For questions or accessibility information, please contact:
📧 anna.gardner@clene.com, Clene Nanomedicine, Inc.

Carry the light and you do not feel the darkness (favorite Dr. Bedlack quote).

Tags: ALS, Amyotrophic Lateral Sclerosis, Health, Documentary Screening, Medical Education, Patient Advocacy