The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) is excited to announce the 2018 Conference on Clinical Development in H-ABC and TUBB4A-related Leukodystrophies. Building on existing translational research platforms, this meeting seeks to define clinical outcome measures and lay the groundwork for disease-specific clinical development models to enable more rapid assessment of novel therapeutic agents in the future.

This closed-door event, organized in collaboration with the Global Leukodystrophy Initiative (GLIA) and generously supported by the Foundation to Fight H-ABC, will take place on Friday, Oct. 26, at the Children's Hospital of Philadelphia. A summary of the data presented during the meeting will be shared during the subsequent family conference on Saturday, Oct. 27.

Conference dates and times

2018 Scientific Conference on Clinical Development in H-ABC and TUBB4A-related Leukodystrophy: Friday, Oct. 26, 8 a.m. – 3:30 p.m.
2018 Family Conference on H-ABC/TUBB4A-related Leukodystrophy: Saturday, Oct. 27, 8 a.m. – 3:30 p.m.

Registration

This for this event is by invitation only, and space is limited. Please register immediately to secure your spot on the guest list. There is no registration fee.

Families wishing to learn about the ongoing clinical and research efforts are invited to attend the family conference on Saturday, October 27. Presentations made during the family conference will be streamed live. You may use the link below to access the conference webcast starting at 9:00AM on Saturday, October 27.

http://theglia.org/2018habcmeeting/

Parking

Guest parking is available at the Buerger Center for Advanced Pediatric Care. The Leukodystrophy Center will cover all parking costs. Passes can be obtained at the event.

Contact information

For more information or if you have any questions, please contact Omar Sherbini, MPH, at 215-590-3068 or via email at sherbinio@email.chop.edu.

Clinical Development Strategies for H-ABC and TUBB4A-related Leukodystrophy