Alport Connect 2023 - San Diego, CA (In-Person Only Event)

***UPDATE 3/24/23 at 11:20am Eastern Time: All travel stipends have been claimed at this time.***

Click the orange "Get Tickets" button to reserve your free ticket(s) for Saturday, October 7th's indoor activities at the University of San Diego. Please provide individual details for each ticket holder (please do not duplicate name for multiple tickets orders etc.). Sunday, October 8th is entirely outdoors at a local beach and tickets are not required to attend. Alport Connect 2023 will not include virtual participation or be recorded.

Stipends will be offered on a first come, first served basis to all Saturday, October 7th Adult Patient/Family Member Program (18+), Teen Program (Patients ages 13-18), and Kids Program participants (Patients ages 7-12). During checkout, eligible ticket holders can indicate their interest in this offer and will receive a follow up email to confirm the stipend.

Saturday, October 7th is an indoor event at the University of San Diego - tickets are FREE but require reservation:

Saturday's educational sessions will be held on the campus of the University of San Diego with three separate, simultaneous programs: Adults (ages 18+), Teens (ages 13-18), and Kids (ages 7-12). All programs will run simultaneously and are facilitated by medical professionals and trained patient volunteers. Note: The Teen and Kids programs are only for individuals with Alport syndrome. As space is limited, we cannot accommodate unaffected siblings or those under the age of 7 at this time.

Learn from leading Alport syndrome adult and pediatric physicians, researchers, genetic counselors, fellow patients, and more.

Sunday, October 8th does not require a ticket and will be held at a local beach:

Bring your entire family for a morning of social interaction featuring beach games, breakfast snacks, and time to make lifelong connections with other patients and families.

As only a limited amount of tickets are available for Alport Connect 2023, we kindly request that those interested in attending the Saturday, October 7th indoors event only reserve a ticket if they assuredly plan on attending this in-person gathering with no virtual component. If you reserve a ticket(s) and your plans change, please promptly email ASF (info@alportsyndrome.org) so your ticket(s) can be released to others.

Alport Connect 2023 is a unique opportunity to interact with medical professionals who have expertise in our rare disease, researchers, and with other Alport syndrome patients/families from across the country. It will be a weekend of learning, connecting, socializing and getting empowered as a community of patients and families. You'll leave the weekend-long event feeling empowered with knowledge and supported by new friends in the extended Alport Community.

Whether you are newly diagnosed or a patient/caregiver with a long history and journey with Alport syndrome, there is a place and purpose for you at Alport Connect 2023.

“Go. Just go. Do whatever you can to attend, and bring the whole family. It was very helpful not only to my teenage son, but also incredibly helpful for me and my husband as parents, and my adult son who does not have Alport syndrome. It helped him understand what his brother is going through, and how to support him. It brought us closer as a family.”

-Alport Patient Mother and prior Alport Connect attendee

Travel Stipend Policy Alport Connect 2023

Stipends are offered on a first come, first served basis to all Saturday, October 7th Adult Patient /Family Member Program (18+), Teen Program (Patients ages 13-19), and Kids Program (Patients ages 7-12) participants.

Limited stipends are available with priority given to patients living in the United States. Total not to exceed $1,000 per household in order to distribute the travel stipends as widely as possible.

Using Google Maps from home address to event site address (Hahn University Center, Alcala Park Way, San Diego, CA 92110):

$150 for each participant traveling 100-249 miles

$300 for each participant traveling 250-749 miles

$500 for each participant traveling 750 miles or more.

Stipends to be confirmed by email following ticket reservation for the event.

Checks will be provided in person at the end of the day on Saturday, October 7, 2023.

Lodging Information

Click here to view our Lodging Overview document.

Event Parking

Free parking is available on the University of San Diego campus.

COVID Safety

By registering for Alport Connect 2023, you acknowledge that Alport Syndrome Foundation and the University of San Diego event space reserve the right to potentially implement additional COVID safety precautions based on the health climate at the time of the event. This may include, but is not limited to indoor mask mandates and social distancing during portions of the weekend event.

Thank you to our Alport Connect 2023 Sponsors: