A World Beyond Wheels 5k Run, Walk, Roll

This event is dedicated to advancing knowledge, fostering collaboration, and raising awareness about DMD, a severe genetic disorder characterized by progressive muscle degeneration and weakness. This conference brings together patients, families, caregivers, researchers, healthcare professionals, and advocates to share the latest advancements in research, treatment, and care, while also providing support and resources to those affected by the condition.

Key Themes and Topics

• Medical and Scientific Research

• Updates on the latest breakthroughs in DMD research, including gene therapy, exon skipping, and novel treatments.

• Clinical Care and Management:

• Best practices for managing symptoms, improving quality of life, and addressing complications such as cardiac and respiratory issues.

• Patient and Family Support: Resources and strategies for coping with the emotional, physical, and financial challenges of living with DMD.

• Emerging Technologies: Innovations in assistive devices, mobility aids, and adaptive technologies to enhance independence and daily living.

• Clinical Trials: Information on ongoing and upcoming clinical trials, and how patients can participate.

• Psychosocial Aspects: Addressing mental health, education, and social integration for individuals with DMD and their families.

What to Expect When Attending

• Keynote Speakers: Hear from leading researchers, clinicians, and advocates who are at the forefront of DMD research and care.

• Panel Discussions: Engage in conversations with experts, patients, and families about the challenges and opportunities in DMD treatment and advocacy

• Networking Opportunities**: Connect with other families, caregivers, and professionals to share experiences, advice, and support.

• Exhibition Hall: Explore exhibits from pharmaceutical companies, non-profits, and organizations offering products, services, and resources for the DMD community.

• Patient and Family Stories: Gain inspiration and insight from personal stories and experiences shared by individuals living with DMD and their families.

Who Should Attend:

Patients and families affected by Duchenne Muscular Dystrophy. - Healthcare professionals, including neurologists, cardiologists, pulmonologists, and physical therapists. - Researchers and scientists specializing in neuromuscular disorders. - Advocates and representatives from patient advocacy organizations. - Policy makers and stakeholders involved in healthcare and disability rights. Educators and school administrators working with children with DMD.