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Kathy Casillias

I am excited to be a part of the big WOW to build awareness and raise needed funds for research of Wilson’s disease. This disease hit home with me when my three nephews were diagnosed with WD. The oldest of the three, Nicolas, was hospitalized in December of 2012 and almost died with liver and bone marrow failure. Six months later, he was diagnosed with liver cirrhosis from Wilson’s disease. He was 16 at the time. Shortly after, his younger twin brothers were diagnosed with WD and had low grade hepatitis at the time. Since diagnosis they have experienced improvements with treatments but have had challenges as well. It will be an honor for me to initiate the big WOW in the Los Angeles area and partner with others in bringing about much needed awareness of this deadly disease. Because of lack of awareness, many WD patients go undiagnosed until it is too late to correct the damage. We want to get the word out and do whatever research is needed to conquer this illness!

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