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Jen Means

Our amazing Abigail was diagnosed with a terrifying genetic disorder called Sanfilippo Syndrome in 2015.  It is sometimes called "Childhood Alztimer". We were devistated to know that she was slowly dying.  The average lifespand for these children is 14.  But...there is hope.  We have hope and we ask that you help us "Fight For Abigail".  There is a current trial (amoung many) in Columbus Ohio that has had some promising results so far.  Time is against us and we need funding to continue the trials.  Please join us in our Fight.  We are thankful for your attendence as well as any monetary donation. Please keep all families affected by this frightful desease in your prayers.

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