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debra of America

Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB). EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births. Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores- inside and outside their bodies. There is NO cure and the only treatment is wound care, bandaging and pain management.

DebRA's mission is to alleviate the inherent daily stress of living with "the worst disease you've never heard of."

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