Syngap1 Foundation

SYNGAP1 Foundation, formerly (Syngap1), is the leading 501(c)3 nonprofit patient advocacy organization dedicated to improving the quality of life for patients and families affected by SYNGAP1.Our priorities include raising public awareness, patient and family advocacy initiatives, educational programs, scientific research conferences, and financial support for research. In addition, The Syngap1 Foundation maintains the largest SYNGAP1 (MRD5) Online Natural History Data Registry in coordination with NORD and with grant funding provided by the FDA. The registry helps us provide the data needed to accelerate SYNGAP1 research.We have also formed strategic partnerships and collaborations with a diverse group of SYNGAP1 stakeholders to help accelerate the pace of research and maximize our impact.

Upcoming (0)

Sorry, there are no upcoming events

Past (8)

The Inaugural Polo Classic primary image

The Inaugural Polo Classic

Sun, Nov 6 • 3:45 PM

Check ticket price on event

4th Annual SYNGAP1Foundation Golf Classic primary image

4th Annual SYNGAP1Foundation Golf Classic

Mon, Oct 3 • 9:30 AM

Check ticket price on event

21 for 21 Annual Motorcycle Bike Run 2021 primary image

21 for 21 Annual Motorcycle Bike Run 2021

Sat, Jun 26 • 10:00 AM

Check ticket price on event

BTG 5 Year Anniversary Celebration primary image

BTG 5 Year Anniversary Celebration

Sat, Nov 9 • 7:00 PM

Check ticket price on event

UK SYNGAP1 Research Clinic primary image

UK SYNGAP1 Research Clinic

Sun, Jun 23 • 8:00 AM

Free

Spooktacular Soiree for SYNGAP  primary image

Spooktacular Soiree for SYNGAP

Sat, Oct 27 • 7:00 PM

Check ticket price on event

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction primary image

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction

Mon, Feb 20 • 10:00 AM

Check ticket price on event

First International SYNGAP1 Conference primary image

First International SYNGAP1 Conference

Wed, Nov 30 • 8:00 AM

Free

The Inaugural Polo Classic primary image

The Inaugural Polo Classic

Sun, Nov 6 • 3:45 PM

Check ticket price on event

4th Annual SYNGAP1Foundation Golf Classic primary image

4th Annual SYNGAP1Foundation Golf Classic

Mon, Oct 3 • 9:30 AM

Check ticket price on event

21 for 21 Annual Motorcycle Bike Run 2021 primary image

21 for 21 Annual Motorcycle Bike Run 2021

Sat, Jun 26 • 10:00 AM

Check ticket price on event

BTG 5 Year Anniversary Celebration primary image

BTG 5 Year Anniversary Celebration

Sat, Nov 9 • 7:00 PM

Check ticket price on event

UK SYNGAP1 Research Clinic primary image

UK SYNGAP1 Research Clinic

Sun, Jun 23 • 8:00 AM

Free

Spooktacular Soiree for SYNGAP  primary image

Spooktacular Soiree for SYNGAP

Sat, Oct 27 • 7:00 PM

Check ticket price on event

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction primary image

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction

Mon, Feb 20 • 10:00 AM

Check ticket price on event

First International SYNGAP1 Conference primary image

First International SYNGAP1 Conference

Wed, Nov 30 • 8:00 AM

Free

SYNGAP1 Foundation, formerly (Syngap1), is the leading 501(c)3 nonprofit patient advocacy organization dedicated to improving the quality of life for patients and families affected by SYNGAP1.Our priorities include raising public awareness, patient and family advocacy initiatives, educational programs, scientific research conferences, and financial support for research. In addition, The Syngap1 Foundation maintains the largest SYNGAP1 (MRD5) Online Natural History Data Registry in coordination with NORD and with grant funding provided by the FDA. The registry helps us provide the data needed to accelerate SYNGAP1 research.We have also formed strategic partnerships and collaborations with a diverse group of SYNGAP1 stakeholders to help accelerate the pace of research and maximize our impact.

Events

Sorry, there are no upcoming events
The Inaugural Polo Classic primary image

The Inaugural Polo Classic

Sun, Nov 6 • 3:45 PM

Check ticket price on event

4th Annual SYNGAP1Foundation Golf Classic primary image

4th Annual SYNGAP1Foundation Golf Classic

Mon, Oct 3 • 9:30 AM

Check ticket price on event

21 for 21 Annual Motorcycle Bike Run 2021 primary image

21 for 21 Annual Motorcycle Bike Run 2021

Sat, Jun 26 • 10:00 AM

Check ticket price on event

BTG 5 Year Anniversary Celebration primary image

BTG 5 Year Anniversary Celebration

Sat, Nov 9 • 7:00 PM

Check ticket price on event

UK SYNGAP1 Research Clinic primary image

UK SYNGAP1 Research Clinic

Sun, Jun 23 • 8:00 AM

Free

Spooktacular Soiree for SYNGAP  primary image

Spooktacular Soiree for SYNGAP

Sat, Oct 27 • 7:00 PM

Check ticket price on event

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction primary image

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction

Mon, Feb 20 • 10:00 AM

Check ticket price on event

First International SYNGAP1 Conference primary image

First International SYNGAP1 Conference

Wed, Nov 30 • 8:00 AM

Free

The Inaugural Polo Classic primary image

The Inaugural Polo Classic

Sun, Nov 6 • 3:45 PM

Check ticket price on event

4th Annual SYNGAP1Foundation Golf Classic primary image

4th Annual SYNGAP1Foundation Golf Classic

Mon, Oct 3 • 9:30 AM

Check ticket price on event

21 for 21 Annual Motorcycle Bike Run 2021 primary image

21 for 21 Annual Motorcycle Bike Run 2021

Sat, Jun 26 • 10:00 AM

Check ticket price on event

BTG 5 Year Anniversary Celebration primary image

BTG 5 Year Anniversary Celebration

Sat, Nov 9 • 7:00 PM

Check ticket price on event

UK SYNGAP1 Research Clinic primary image

UK SYNGAP1 Research Clinic

Sun, Jun 23 • 8:00 AM

Free

Spooktacular Soiree for SYNGAP  primary image

Spooktacular Soiree for SYNGAP

Sat, Oct 27 • 7:00 PM

Check ticket price on event

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction primary image

1st Annual SYNGAP1 Golf Tournament Classic & Silent Auction

Mon, Feb 20 • 10:00 AM

Check ticket price on event

First International SYNGAP1 Conference primary image

First International SYNGAP1 Conference

Wed, Nov 30 • 8:00 AM

Free