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Xmas UNREST: Screening of Award-Winning ME/CFS Documentary + Xmas Gathering

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YMCA at One KX

120 Cromer Street

London

WC1H 8BS

United Kingdom

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It's #TimeforUnrest!

UNREST is a Sundance award-winning documentary about M.E., the most common disease you've never (truly) seen​... and it's coming to the wonderful OneKx cafe in King's Cross this Thursday 14th December.

The film has had rave reviews and received great coverage - all of which is helping to open up discussion, action and hopefully more scientific research into the woefully under-researched and misunderstood illness M.E. (also known as Chronic Fatigue Syndrome).

Come and join us for a screening of the film, accompanied by popcorn, a short discussion led by Chiara (who's lived with ME for the last 6 years), ideas for action, Christmas cheer and (hopefully) a cash bar with drinks and snacks (more updates on this soon!).

Watch the Unrest trailer here.

Capacity in this new, beautiful venue is limited, so please reserve your tickets through Eventbrite in advance. I want as many people as possible to see the film, so am not charging an entry fee, but cash donations will be taken on the door and all profits will be split between the Unrest charity and the ME Trust.

Suggested donation: £10 ( £5 concessions). Please bring cash for donations on the door


MORE INFORMATION:

More about Unrest the film:

Twenty-eight year-old Jennifer Brea is working on her PhD at Harvard and months away from marrying the love of her life when she gets a mysterious fever that leaves her bedridden and looking for answers. Disbelieved by doctors yet determined to live, she
turns her camera on herself and discovers a hidden world of millions confined to their homes and bedrooms by ME, commonly known as chronic fatigue syndrome.

At its core, Unrest is a love story. Together, Jen and her new husband, Omar, must find a way to build a life and fight for a cure. Their struggle to forge their relationship while dealing with her mysterious illness is at once heartbreaking, inspiring and funny.

More about me (Chiara, the screening organiser):

Just like Unrest filmmaker Jennifer Brea, I contracted ME after a sudden flu-like illness in 2011, and have been struggling to understand and find effective treatments for this mysterious illness for the last six years.

I know at firsthand what a devastating impact ME can have on life - overnight I went from being an active, busy, excitable 29-year old working in Human Rights Law to having to limit my activity in all aspects of my life - forced to give up social life, work, studies and exercise. I would really like to encourage everyone to come and see this groundbreaking film!

More about Myalgic Encephalomyelitis (ME):

“The treatment of today’s ME/CFS patients is comparable to that of lobotomy patients decades ago. When the full history of ME/CFS is written one day, we will all be ashamed of ourselves.”
–Prof. Dr. Ola Didrik Saugstad, Professor of Pediatrics, WHO Advisor, Norway


Myalgic encephalomyelitis (ME) is a systemic neuroimmune condition characterised by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound. In many parts of the world, it is commonly known as chronic fatigue syndrome.

An estimated 15-30 million people around the world are suffering from ME. Approximately 75-85% of them are women and 80-90% of them are undiagnosed. (Estimates vary depending on the diagnostic criteria used.) In the UK alone, over 250,000 people have been diagnosed with ME.

Researchers believe ME is triggered by a virus, but that there is unlikely to be a single viral culprit. Environmental toxins may play a role, but not in all individuals or outbreaks. Like polio or multiple sclerosis, it occurs both in clusters and sporadic form. Its hallmark symptoms include profound cognitive and neurological impairment, tachycardia that prevents many from maintaining an upright or sitting position (“POTS”), immunological dysfunction, and an abnormal response to ordinary exertion.

Despite decades of science documenting profound abnormalities, for the first months and years
of illness many suffering from ME meet with doctors who do not believe they are really ill. In the USA, the disease is taught in just 6 percent of medical schools.

The human cost of medical and policy neglect is tremendous. At the “mild” end of the spectrum,
even patients who still work may lose 50 percent of their previous function. Others are forced to
abandon careers they loved. Twenty-five percent of patients are shuttered in their homes or trapped in bed. At the most severe end of the spectrum, patients may live the rest of their lives in darkened rooms, unable to tolerate light, sound, or human touch. Only 4-8 percent fully recover. Some ME patients, after many years of stigma, isolation, and severe physical disability, commit suicide. Many more stories never come to light.

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YMCA at One KX

120 Cromer Street

London

WC1H 8BS

United Kingdom

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