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Virtual Big Wow - Decatur IL

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Wilson's disease is a rare genetic disorder that leads to copper poisoning in the body, resulting in liver and neurologic disease. Untreated, it is fatal. However, if diagnosed and treated early, people with Wilson's disease can lead normal productive lives! Scroll down to read our story about how Wilson's disease has affected our life.

I was planning on having a walk again this year but knee surgery earlier in the year among other health related issues have changed my plans. Since I can't host a physical walk this year, I decided to host a virtual walk instead in order to help raise both money and awareness for this cause that is so near and dear to me and my family's hearts.

Please follow us on Facebook where I will be posting informational tidbits here and there about Wilson's and what to look for and feel free to share them with others, awareness of this disease and knowing the factors is so important, early detection and treatment is critical. https://www.facebook.com/BigwowDecatur

You still have the option to get shirts & bandana's this year, they will be sent directly to you though since there is no physical location for our walk, and if you don't want a shirt or bandana, you can just donate, any amount is greatly appreciated.

All monies raised are earmarked for research and this year the big project we are trying to fund is the ONLY PATIENT REGISTRY for Wilson Disease.

Please feel free to contact with me with any questions.

Jaime Karakachos

bigwow@otftranscripts.com

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