TRNDS | Technology & Rare Neurological Diseases Symposium
Date and time
Location
University of Rochester
Center for Health + Technology
265 Crittenden Blvd
Rochester, New York 14642
Refund policy
Refunds up to 7 days before event
Eventbrite's fee is nonrefundable.
Description
The Technology & Rare Neurological Diseases Symposium (TRNDS) is a one-day event focused on groundbreaking technologies that are leading the way to novel therapies and impactful treatment options for patients with rare neurological disorders. Hosted by the University of Rochester, TRNDS brings together clinical researchers, policy experts, influential patient advocates and other health care professionals.
TRNDS 2019 Speakers
The 2019 TRNDS program will focus on emerging therapies for genetic disorders, treatment access, the future of newborn screening, and new tools and technologies contributing to the modernization of clinical research.
Alison Bateman-House
Assistant Professor, Department of Population Health, New York University
Tauna Batiste
Executive Director, Batten Disease Support & Research Association
Derek Bowen
Vice President Business Development & Strategy, Blackfynn
PJ Brooks
Program Director, Office of Rare Diseases Research, National Center for Advancing Translational Sciences, National Institutes of Health
Wilson Bryan
Director, Office of Tissues & Advanced Therapies, Center for Biologics Evaluation & Research, Food & Drug Administration
Tanya Fischer
Global Project Head, Sanofi-Genzyme
Jayne Gershkowitz
Chief Patient Advocate, Amicus Therapeutics
David Jacoby
Vice President, Head of Clinical Science, BioMarin Pharmaceutical
Rachel McMinn
President & CEO, Neurogene Inc.
Traci Schilling
Executive Director, Gene Therapy Clinical Development, PTC Therapeutics
Ben Schlatka
CEO, President & Co-Founder, mc10
Marshall Summar
Director, Rare Disease Institute, Children’s Hospital Health System; Board Chair, National Organization for Rare Disorders
Nancy Yu
Co-Founder & CEO, RDMD
Dina Zand
Medical Officer, Center for Drug Evaluation & Research, Food & Drug Administration