The Technology & Rare Neurological Diseases Symposium (TRNDS) is a one-day event focused on groundbreaking technologies that are leading the way to novel therapies and impactful treatment options for patients with rare neurological disorders. Hosted by the University of Rochester, TRNDS brings together clinical researchers, policy experts, influential patient advocates and other health care professionals.

TRNDS 2019 Speakers

The 2019 TRNDS program will focus on emerging therapies for genetic disorders, treatment access, the future of newborn screening, and new tools and technologies contributing to the modernization of clinical research.

Alison Bateman-House
Assistant Professor, Department of Population Health, New York University

Tauna Batiste
Executive Director, Batten Disease Support & Research Association

Derek Bowen
Vice President Business Development & Strategy, Blackfynn

PJ Brooks
Program Director, Office of Rare Diseases Research, National Center for Advancing Translational Sciences, National Institutes of Health

Wilson Bryan
Director, Office of Tissues & Advanced Therapies, Center for Biologics Evaluation & Research, Food & Drug Administration

Tanya Fischer
Global Project Head, Sanofi-Genzyme

Jayne Gershkowitz
Chief Patient Advocate, Amicus Therapeutics

David Jacoby
Vice President, Head of Clinical Science, BioMarin Pharmaceutical

Rachel McMinn
President & CEO, Neurogene Inc.

Traci Schilling
Executive Director, Gene Therapy Clinical Development, PTC Therapeutics

Ben Schlatka
CEO, President & Co-Founder, mc10

Marshall Summar
Director, Rare Disease Institute, Children’s Hospital Health System; Board Chair, National Organization for Rare Disorders

Nancy Yu
Co-Founder & CEO, RDMD

Dina Zand
Medical Officer, Center for Drug Evaluation & Research, Food & Drug Administration