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Treacher Collins Network 7th Annual Retreat

Treacher Collins Network

Friday, June 23, 2017 at 2:00 PM - Sunday, June 25, 2017 at 1:00 PM (EDT)

Treacher Collins Network 7th Annual Retreat

Ticket Information

Ticket Type Sales End Price Fee Quantity
Individual (Early Bird)
Ticket for 1 person.
Apr 1, 2017 $75.00 $5.12
Family (Early Bird, up to 3 TOTAL)
Register up to 3 members of a family. For additional family members, please buy the $10 tickets.
Apr 1, 2017 $150.00 $9.24
Additional Family Members (Early Bird)
$10 for each additional family member. You must buy the Family Ticket (up to 3 people) FIRST.
Apr 1, 2017 $10.00 $1.54
Individual
Ticket for 1 person to attend.
Not Started $95.00 $6.22
Family (up to 3 TOTAL)
Register up to 3 members of a family. For additional family members, please buy the $15 tickets.
Not Started $180.00 $10.89
Additional Family Members   more info Not Started $15.00 $1.82
** MAKE A DONATION **
Your donation will help another family attend. Online donations are not tax deductible. To make a tax deductible donation, please send a check to the Federation for Children with Special Needs at 529 Main Street, Suite 1M3, Boston, MA 02129. Write Treacher Collins in memo field.
Jun 25, 2017 Enter donation ($)

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Event Details

RETREAT OVERVIEW

The Treacher Collins Network, with sponsorship from Cincinnati Children's Hospital, is pleased to announce the 2017 Treacher Collins Retreat!  This year is very special, as we introduce Cincinnati Children's new Treacher Collins Center to the TCS community!  Please join us Friday, June 23th through Sunday morning, June 25th, for this great weekend filled with fellowship, inspirational speakers, doctor and other presentations, tour of the hospital, and entertainment.  Below is an overview of the weekend as well as important information regarding babysitting services and special needs (finalized detailed itinerary will be updated in May).  Please read all information in this form and let us know if you have any questions.  We look forward to seeing you there!

Friday, 23th / Cincinnati Children's Hospital 

  • Registration:                         2:00pm – 6:00pm  

  • Dinner:                                 6:30pm – 7:30pm

  • Special Genetics Speaker:      7:30pm - 8:00pm    

  • Inspirational Speakers/          
    Fellowship:                           7:45pm – 9:30pm 

Saturday, 24th / Cincinnati Children's Hospital

  • Breakfast:                            6:30am – 8:30am (Hotel)

  • Doctor Presentations:            9:00am – 12:30pm

(Children 12 yrs and under not allowed in Medical Presentations; Babysitting Room provided with qualifed trach nurse and crafts.)

  • Lunch:                                 12:30pm – 2:00pm

  • Tour of Hospital:                   2:00pm – 3:00pm

  • Other Presentations TBA:       3:00pm – 6:15pm

  • Dinner:                                6:30pm – 7:30pm

  • Entertainment:                     7:30pm – 8:30pm

  • Dance:                                 8:30pm – 10:45pm

Sunday, 25th / Hotel

  • Breakfast:                            6:00am – 10:00am
  • Fellowship Room:                  8:00am –  1:00pm

Monday, 26th / Cincinnati Children's Hospital

  • Clinic Day                             8:00am –  4:00pm 

CCHMC will be holding a clinic day following the retreat for those who are interested.  We are offering this to patients/families who are from out of town and have not been seen at Cincinnati Children’s before.  The clinic day will be a chance to meet with several of our TCC care team specialists at one time to evaluate your child.  We have limited space available and this will be offered on a first come, first serve basis.  I will reach out to you to further discuss logistics of the clinic day and if you would be a good candidate.  We will need a release of records to ensure the appointments are as beneficial as possible.  I can send this form to you in advance so we have all the records here when you arrive.

PLEASE NOTE: Transportation will not be available on Monday but you may take an Uber/Lyft or walk the 2 blocks to the hospital.  


 
*Shuttle Transportation will be provided between hotel and hospital for all events.  Hospital/Hotel also are within walking distance of each other (two blocks).  There is no shuttle or transportation to/from airport/hotel.  Closer to the event, we can share information so that attendees can Uber/Lyft share-ride the 30 minutes to the hotel/airport. 



REQUEST A PAPER COPY OF REGISTRATION FORM

If you are not completing this form online and would prefer to pay by check, Paypal, or submit credit card info privately, please email Judy at Judy.Mosher@cchmc.org or call 704.201.9720 to request a paper copy of the registration form or to get the email address to pay by Paypal.


 SATURDAY MEDICAL PRESENTATION TOPICS

  • Overview of the Treacher Colins Center
  • Mandibular 2-pin Distraction / RED Device
  • Lefort Procedure
  • Microtia / Ribgraft Procedure
  • Cleft Palate Repair
  • Insurance
  • Baha/Ponto/Middle Ear issues
  • ENT issues
  • Anesthesia
  • Genetics (newer TCS genes)

 


HOTEL ACCOMMODATIONS:

Hampton Inn & Suites - Cincinnati Uptown/University Area
3024 Vine St
Cincinnati OH 45219
513.281.2700

The following rooms and suites are available in the block:

- King Suites: 15 available / Rate: $124/per night plus taxes ($146 w/tax)
- Queen DBL Rooms: 50 available / Rate: $119 ($140 w/tax)
- King Rooms: 12 available / Rate: $119 ($140 w/tax)
Please note: If you need a refrigerator in your room, the KING SUITE is the only option for that.
If you desire one of the King Suites, you need to reserve as soon as possible since there are few. The King Suite has a couch w/pull-out bed and are larger in size.

You must mention TREACHER COLLINS RETREAT when reserving your room by phone to get the discount (the online link already knows).  Number of people in your room may increase cost of room in some incidences.

BOOKING YOUR HOTEL ROOM:

You may call or book online to reserve your room.  All rooms must be booked by May 10, 2017.  Any cancellations must be done 24 hours in advance, and in writing, or you will be responsible for the first night's fee plus taxes.
Please call 513-281-2700 or visit this link: Click Here to Book Your Room

- A buffet breakfast is included and served in the hotel restaurant
- Hotel parking is $9/day
- Hotel has an indoor pool

AIRPORT INFORMATION:

The airport is CVG.  The distance between the airport and hotel is 25-30 minutes.  There is no shuttle or transportation to/from airport/hotel.  Closer to the event, we can share information so that attendees can Uber/Lyft share-ride the 30 minutes to the hotel/airport. 

Any questions about Hotel or other form items, please contact Judy at Judy.Mosher@cchmc.org or 704-201-9720


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*MAKING A DONATION:  Please help a family attend the retreat by making a donation.  You can do this in one of two ways; by selecting the Make A Donation prompt above at the end of the Ticket section, or by calling or emailing me for assistance to make one by check or to use your credit card privately. 
Judy.Mosher@cchmc.org or 704-201-9720
==========================================


FINANCIAL ASSISTANCE:

You may be able to call or apply online for assistance with the registration fee by visiting this site.  They only approve a very few applications.
http://www.nasddds.org/state-agencies/


 We hope to see you there!

 

 

 

 

Have questions about Treacher Collins Network 7th Annual Retreat? Contact Treacher Collins Network

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When & Where


Cincinnati Children's Hospital Medical Center
3333 Burnet Ave
Cincinnati, Ohio 45229

Friday, June 23, 2017 at 2:00 PM - Sunday, June 25, 2017 at 1:00 PM (EDT)


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Organizer

Treacher Collins Network

Our Mission: To connect, educate and support the global community of people with Treacher Collins syndrome by providing fellowship, medical and networking resources, while imparting to our children the strength, courage and importance of not allowing a facial difference to define us.

 

  Contact the Organizer
Treacher Collins Network 7th Annual Retreat
Things to do in Cincinnati Networking Family & Education

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