Actions Panel
This Is USH an evening of conversation
Steven McCoy and Rebecca Alexander, with moderator Danita Chantel, will take the stage to share the lived experience of Usher syndrome ;USH
When and where
Date and time
Location
Joseph B. Martin Conference Center 77 Avenue Louis Pasteur Boston, MA 02115
Map and directions
How to get there
About this event
Steven McCoy, the first recognized black deafblind journalist in the US, and Rebecca Alexander, an award-winning author and psychotherapist who is almost completely blind and deaf will take the stage with moderator and esteemed media personality, Danita Chantel to talk about the unique experience of living with Usher syndrome, a rare genetic disease that causes progressive loss of both vision and hearing. Rebecca and Steven will address a range of topics including how to cultivate a deeply meaningful life in the face of adversity, using vulnerability as a tool for empowerment, finding comfort with discomfort, grief and loss, intersectionality, self-advocacy, and beyond.
The event is free and open to the public.
5:00 pm-7:00 pm Drinks and Appetizers
6:00 PM- 6:15 PM Private Film Premier
6:15 PM- 7:15 PM Discussion + Q & A
7:15 Pm -7:45 PM Meet & Greet
8:00 PM End of Event