The Rett Clinic Family Symposium
Free
The Rett Clinic Family Symposium

The Rett Clinic Family Symposium

Event Information

Share this event
Date and Time
Location
Location

Children's Hospital Colorado Anschutz Medical Campus, Aurora

13123 East 16th Avenue

Aurora, CO

View Map

Event description

Description

Location: Mt. Yale Confrence room, 2nd floor Confrence Center

The Rett Clinic at Children’s Hospital Colorado is very excited to host our first Family Symposium. We will have clinic specialist and guest speakers talk on a range of topics for families who have a child with Rett, CDKL5, MECP2 Duplication and FOXG1. We hope that each family walks away with valuable knowledge on things affecting their child, as well as some new tools to help manage and plan for your child’s day to day care. One guest speaker will focus on planning for your child’s future, focusing on the legal and financial planning of having an aging disabled child/adult. We will also have multiple family support groups and vendors for families to talk with and connect with.

Program

7:30   Registration and Breakfast Family Social Time

8:00   Welcome

         Tristen Dinkel, CNRN, CPN, RN, BSN, Rett Clinic Coordinator

8:05   Rett and Rett-related disorders. Progress in research and the clinic.

         Tim Benke, MD, PhD, Medical Director, Rett Clinic and Research Director, Neuroscience Institute

9:15   How can we be better communication partners?:  A look at AAC and intervention strategies

         Meghan Shank, M.E.d., CCC-SLP, Augmentative and Alternative Communication Team Lead, Speech-              Language Pathologist

10:00  Break

10:15  Seizure Types and Treatment in Rett Syndrome and Rett Like Disorders

          Scott Demarest, MD, Neuroscience Institute

11:15  Gynecologic Considerations in Girls and Young Women with Rett and Rett Like Disorders

         Eliza Buyers, MD, FACOG, Pediatric and Adolescent Gynecology, Children’s Hospital Colorado

12:00  Lunch

1:00   Setting Goals and Achieving Function

         Margaret Spring MS OTR/L, Occupational Therapy Department

1:30   Movement disorders within the Rett Clinic Population

         Anne Stratton, MD, Rehabilitation Medicine Department

2:00   Special Needs Planning Options for Families

         Susie Germany, Esq., Elder Law and Probate Attorney

        Megan Brand, Executive Director of Colorado Fund for People with Disabilities

3:00   Wrap Up and closing



Share with friends
Date and Time
Location

Children's Hospital Colorado Anschutz Medical Campus, Aurora

13123 East 16th Avenue

Aurora, CO

View Map

Save This Event

Event Saved