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The Atypical HUS Foundation Family Conference - Iowa
Fri, Nov 4, 2016, 12:00 PM – Sun, Nov 6, 2016, 12:00 PM CDT
You’ve been asking for it and we are excited to bring it to you.
The Atypical HUS Foundation is proud to announce that we will be presenting our aHUS Family Conference in conjunction with The University of Iowa in Iowa City, IA November 4-6, 2016 at the Sheraton Iowa City Hotel. Who better to bring you all the latest aHUS information than the organization that you have come to depend on for many of your aHUS questions. Please mark your calendar and make plans now to join us for this informative family support and medical conference. You can read additional information from the University of Iowa at
As the only foundation in the United States that supports Atypical HUS, this conference is your best opportunity to learn of the latest in medical care, clinical trials and current research information directly from prominent researchers and doctors who work directly with Atypical HUS.
Most importantly, The Atypical HUS Family Conference allows you to personally meet and build relationships with other patients and families affected by Atypical HUS. The opportunity to meet others face-to-face with those dealing with the same daily challenges is extremely valuable.
After registering here, you will be emailed a registration packet during the first week of April. This will need to be returned no later than August 1, 2016 to hold your spot. Don’t wait too long though as attendance will be restricted. This is one of our most well attended conferences as you will be able to hear directly from some of the top researchers and physicians. As of right now, we are limiting registration to 1 room per patient/family. If you are bringing children that will be staying in your room, we have a limited number of double queen rooms available. Please email the contact on eventbrite to submit your request. When these are filled, it will be posted. Also, at this time, due to difficulty in accommodations, we are not planning any activities for children.
Additionally, to hold your room, we require a non-refundable $50 deposit by August 1, 2016. However, at the end of the conference and after attending each conference session, you will be mailed a $100 stipend!
The Atypical HUS Foundation is excited to meet each one of you and welcome you to the beautiful city of Iowa City.
The Atypical HUS Foundation does not want financial considerations to be a factor in whether or not you are able to attend this important conference; which is why we are paying all onsite expenses related to the conference, including the room expense. As you know, room cancellations are very expensive and that as a non-profit, we are in no position to absorb these types of costs. We ask that if you need to cancel, you do so as soon as possible, but no later that 72 hours before the start of the conference. Failure to do so, could result in your paying the hotel the equivalent of one night’s room charge. We thank you for your understanding our need to do this.
Dates To Remember:
Registration Deadline: August 1, 2016 (here on eventbrite)
Registration Forms Due: August 1, 2016 (these will be emailed to you for you to fill out and email back)
** Portions of this event are made possible through a generous grant from Alexion Pharmeceuticals, Inc.