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Tee Off for Twinsanity *Round 2

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Fowler's Mill Golf Course

13095 Rockhaven Road

Chesterland, OH 44026

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No Refunds

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Please join us for a day of golf and a night of BBQ fun to support the Cystic Fibrosis Foundation.

Even if you CANNOT attend, please consider sponsorship or donation by CLICKING on the TICKETS link

12pm: Golfer Registration

1pm: Shotgun Start

5pm: Dining Room Opens

6pm: BBQ and Prizes

Our family has benefited so much from this foundation, it is our turn to help give back.

Bethany and Lucy are our Twin Girls who were diagnosed with Cystic Fibrosis at birth. So, over the last 6 years, we have begen their life long battle to combat this disease. Their battle consists of daily breathing treatments, percussive vests, meds for lung function/ inflammation/ digestion/ malabsorbsorption, and tube feeding. Each day they take over 30 pills a peice, use specialized equipment, and require specialized formula. All this has been made possible through the incredible research funded by the Cystic Fibrosis Foundation. The price tag is not cheap, and there are two of them. Also, unfortunately, due to the specialied nature of their medications- some are not covered by insurance either. That's where the CF Foundation steps in again. Right now they, along with the companies who manufacture the medications, help to cover the cost of THREE of the girls life saving medications. One is Pumozyme, this keeps their lungs from building up dangerous mucus that could causne lung damage. The second is Relizorb, a specialized cartridge that allows their little bodies to digest their tube feeds over night so they can gain the weight necessary to fight CF. The third is our most exciting medicaton. They just turned 6, so they have started the incredible new CF drug Orkambi, which is supposed to help prevent any future CF damage to occurt to their little bodies... how incredible is that.
Please help us give back to the foundation that has given us so much... Help us add tomorrows.


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Date and Time

Location

Fowler's Mill Golf Course

13095 Rockhaven Road

Chesterland, OH 44026

View Map

Refund Policy

No Refunds

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