$20 – $30

Step Up for NF - St Paul (2017)

Event Information

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Date and Time

Location

Location

Como Park Zoo & Conservatory

East Como Picnic Grounds/Midway Pavilion

1199 Midway Parkway

Saint Paul, MN 55103

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Friends Who Are Going
Event description

Description

Step Up for NF is our signature annual fundraising walk, and funds raised from the event help us:

  • Provide financial assistance to individuals with NF who are facing NF-related issues or emergencies

  • Sponsor kids with NF to attend a residential camp for children and families with chronic health conditions

  • Award grants to attend NF-related conferences

  • Host informational forums on relevant topics

  • Lobby to ensure continued federal funding of NF-related research



Event Info

Step Up For NF - St Paul is an approximately 2 mile walk around Como Lake, and 2017 marks our 7th annual event. In addition to the walk, the event will host kids activities, a raffle basket fundraiser, and lunch. It promises to be a fun time for the whole family! It's also a great opportunity to meet other local families affected by neurofibromatosis!



Where

Como Park Zoo & Conservatory / East Como Picnic Grounds / Midway Pavilion

1199 Midway Parkway, St Paul, MN 55103



Time

Check-in: 9 am

Walk: 10:00 am

Ends: 1:00 pm



Pre-registration cost:

$20 per individual

$30 per household

On-site registration cost:

$30 per individual

$40 per household

Plan ahead and register early to save!

Donations

You can make a donation to NF Upper MIdwest if you're unable to attend the event - just click on the TICKETS button!



T-shirts

All participants receive an NF Upper Midwest t-shirt the day of the event.

To ensure more dollars are directed to finding a cure for NF, and to reduce administrative costs, we are unable to mail t-shirts to participants who are unable to attend the event.



Set up a fundraiser!

Set up a fundraiser through our NF Upper Midwest team on Razoo, and receive free registration for the walk if you raise $100 or more.

Join our team here: https://www.razoo.com/team/Step-Up-For-Nf-St-Paul-2017

Please contact us if you would like support with your fundraising efforts!

Don't forget to follow us on Facebook!



Weather

The event will happen rain or shine, so please dress accordingly.



Pets

Please use your best judgment regarding your pet's ability to handle crowds. Dogs that are uncomfortable with children and crowds should not attend the walk.



Payment options, fees, receipts, and donation questions

Forms of payment accepted

  • We accept all major credit cards, personal checks (made payable to NF Upper Midwest), and cash.

  • Credit card payments made onliine through Razoo will appear on your statement as "Razoo Foundation."

  • Donation checks can be brought to the event or mailed to the NF Upper Midwest office at 1430 Concordia Avenue #40241, St Paul, MN 55104.

  • Cash donations can be brought to the event, although it is safest and preferred if it be made online or by check.

  • If you arrive to the event late, please bring your donation directly to the check-in area.


Receipts

  • You will automatically receive a receipt when registering and/or donating online through Razoo.

  • Registrations and donations made by check will be mailed an acknowledgement letter within 6 weeks.


Tax deduction

  • Your registration fee and/or donation are tax deductible to the extent allowed by the law. NF Upper Midwest is a registered 501(c)(3) organization. Our tax ID number is 411382639.


Fees

  • There are no transaction fees incurred by the donor. If you want to donate $100.00 you will be charged $100.00. If any additional fees are indicated on your credit card statement, please contact us at 651-204-0067.


Matching gifts

  • Your employer's Human Resources Department can let you know if they offer matching gifts, and will provide you with instructions on how to submit a request. You will send NF Upper Midwest a completed and signed matching gift form, along with your donation, if your employer has a matching gift program. The impact of your gift to our organization may be doubled or possibly tripled, so ask if it's offered!


Post-event donations

  • Donations are always welcomed! If you have donations to submit after the event, please contact NF Upper Midwest at info@nfuppermidwest.org or 651-204-0067.



For any further questions or concerns, please contact NF Upper Midwest at info@nfuppermidwest.org or 651- 204-0067.



What is Neurofibromatosis (NF)?

NF is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to 3,000 births). Neurofibromatosis affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.

NF has three genetically distinct forms: NF-1, NF-2 and Schwannomatosis. They are caused by different genes and chromosomes. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for any form of NF, although the genes for both NF-1 and NF-2 have been identified.

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Date and Time

Location

Como Park Zoo & Conservatory

East Como Picnic Grounds/Midway Pavilion

1199 Midway Parkway

Saint Paul, MN 55103

View Map

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