$20 – $50

Spare Some Love for CdLS

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Novi Bowl Family Fun Center

21700 Novi Road

Novi, MI 48375

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Our family would like to invite you to the first annual Spare Some Love for CdLS Bowling Fundraiser!!!

About this Event

My name is Kristin Willey. I am the parent of a 21-month-old boy, Connor, who was diagnosed with Cornelia de Lange Syndrome (CdLS) when he was 8 months old.

Cornelia de Lange is a rare genetic syndrome that affects approximately 1 in 10,000 live birth, affecting both males and females equally. The syndrome causes a broad range of physical, cognitive and medical challenges.

The CdLS Foundation is a national non-profit organization that has served individuals with CdLS and their families since 1981. The Foundation's mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope. The CdLS Foundation provides resources to individuals with CdLS, families, educators, and medical professionals. The Foundation also provides scholarships to families to attend the biennial conference so they can meet with the experts/specialists of Cornelia de Lange Syndrome.

Our family is hosting the first annual "Spare Some Love for CdLS" Bowling Fundraiser on May 18, 2019 in Novi, Michigan. This fundraiser will have a silent auction and raffle to help raise funds in support of the programs and services provided by the Foundation. We will have some great items to be raffled/auctioned off! You won't want to miss out!

About the “Spare Some Love for CdLS” event:

* Bowling: $20 per person - includes 2 games of bowling, shoe rental, 2 pieces of pizza, and soda

* Lane Sponsor: $50 - Your family or business can contribute by being a lane sponsor. When purchasing "tickets" to be a lane sponsor, please indicate, when checking out, what you would like your banner to say. For example, "The Willey Family". If you want a specific logo included on the banner, please email it to kmwilley1@gmail.com. High resolution .jpg, .ai, or vector files accepted.

* Donate directly to the CdLS Foundation: Can’t make the bowling fundraiser? That's okay! You can still donate directly to the CdLS Foundation through this Eventbrite website. We hope to see you next year!

The CdLS Foundation is a 501(c) (3) non-profit organization, Tax ID # 06-1057497, and exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help those affected by the syndrome make informed decisions through their lives.

Thank you for considering donating to this special cause. It means so much to our family.

Kristin, Joe, Kyla, and Connor Willey

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Novi Bowl Family Fun Center

21700 Novi Road

Novi, MI 48375

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