On June 30, 2015, my son, Joseph John Moore II entered this world a beautiful and healthy baby boy. At 2 months of age Joseph was admitted to the Robert Wood Johnson Children’s Hospital in New Jersey. 60 days and over 80 test and procedures later, Joseph was diagnosed with a rare leukodystrophy known as Alexander’s Disease.
Trusting in God’s perfect timing despite the outcome is one of the many lessons learned through Joseph’s story. It’s not always easy, it often hurts, and there are days when confusion and hopelessness are what seem to be left. But “We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us. . .” Romans 5:3-5a! I am a mother who had to plan a funeral for her one and only son, before he was even able to walk. If I were not confident in the hope provided by the Holy Spirit, my days would be filled with sorrow and my nights with tears. Instead, the tears I cry are those of joy and hope. I have hope at the end of this terrible chapter, and I am compelled to share that hope with all who are in need of it.
I invite you to join me in celebrating the lives lost and and ensuring that others are soon saved! I am collaborating with local and regional artists to host Sounds of Hope: a benefit concert to raise awareness, change lives & give hope. 60% of the proceeds and donations raised through Sounds of Hope are going Hunter’s Hope, and the Leukodystrophy Care Network. 10% of the proceeds will support the Anchorage Breakfast Program to feed over 120 meals a day in the city of Lancaster. The remainder of the proceeds will support smaller local organizations such as Water Street Mission, YWCA Lancaster and Clare House, Lancaster.
Losing a child is a parents greatest hardship. Together we can help doctors and researchers identify these diseases sooner, provide appropriate care and one day save lives. Thank you for your thoughts, prayers and support.
LIVE MUSIC! LOCAL & REGIONAL ARTISITS!
PA CLEARANCE CERTIFIED CHILDCARE AVAILABLE!
LIGHT HORS DERVS!
AMAZING SILENT AUCTIONS!
This will be a wonderful evening! You don't want to miss it!