Shakthi - Tamil musical fundraiser by Rhythms Studio

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Sammamish High School Performing Arts Center

100 140th Avenue Southeast

Bellevue, WA 98005

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Event description
Shakthi is a Tamil musical fundraiser organized by Rhythms Studio to create a bright future for a cheerful little boy, Raghav.

About this Event

Who is Raghav?

Raghav is a one year old boy who was recently diagnosed with a rare genetic condition in a gene called GPX4. This mutation affects energy production in the body and does not allow basic motor functions that enable Raghav to engage with the world like other babies do.

But can’t a medicine make this better?

Unfortunately, NO (NOT YET!). There is no cure for this today. He is the only known person in the world to have this specific condition. This is classified as one of the rare diseases, often also referred to as “orphan disease” because drug companies are not interested in adopting them to develop medicines.

But isn’t there a way out?

There is! We know Raghav is a happy boy who given a chance could prove his potential and fight for an incredible future. But the path to getting there is big- we have to work with researchers and pharmaceutical companies to find a cure for this little one. It is an unknown territory, time consuming and very expensive.

How can you help?

Rhythms Studio is organizing a fundraiser music show to support the research to find a cure for Raghav. Please buy tickets and join us on Oct 20th @ 4.30pm to show your support.

Every baby deserves a fair chance, be it normal or RARE!

If you believe in our mission, we want you there!

Date and Time

Location

Sammamish High School Performing Arts Center

100 140th Avenue Southeast

Bellevue, WA 98005

View Map

Refund Policy

No Refunds

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