$40

September Virtual Sarcoidosis Patient Education Summit

Event Information

Location

Location

Online Event

Refund Policy

Refund Policy

Contact the organizer to request a refund.

Eventbrite's fee is nonrefundable.

Event description
FSR Sarcoidosis Patient Education Summits are a valuable educational resource for those living with sarcoidosis and their caregivers.

About this Event

FSR's Virtual Patient Education Summit will provide presentations from expert physicians and researchers, as well as lectures and exercises in lifestyle, emotional well-being, legal and financial matters, and FSR resources. Attendees will be able to choose which presentations to attend based on which are the most relevant to their lives.

There will also be a self-care station and ample opportunities for attendees to relax and recharge between sessions.

Sample agenda:

Saturday 8:00-8:15 AM Plenary Session: FSR

8:15-9:10 AM Plenary Session: COVID-19 Pandemic Update for Sarcoidosis

9:15-10:15 AM (Choose one)

  • Is it sarcoidosis? When and how to figure out if you have sarcoidosis?
  • Disability & Employment Rights
  • Advanced Sarcoidosis (cardiac, neuro, and advanced pulmonary)
  • Navigating Insurance: The Basics, what you need to know

10:15-10:30 Break

10:30-11:30 AM (Choose one)

  • Monitoring: what you need to know
  • Brain Fog: Can Anything be Done About It?
  • Nutrition

11:30 AM – 12:30 PM (Choose one)

  • Why does my doctor always want to give me prednisone?
  • Other Manifestations of Sarcoid (GI, Bone/Joints, Ocular, Skin)
  • Be Heard: Communicating with your medical team

12:30 – 1:30 PM BREAK/Networking

1:30 – 2:30 PM (Choose one)

  • Depression & Anxiety
  • Exercise
  • Patient Speaker Panel: Topics vary

2:30 -3:00 PM Self-Care Break

3:00 – 4:00 PM Plenary: The Research Wheel: How You Can Help Research Move Forward

4:00 – 5:00 PM (Choose one)

  • Navigating Personal relationships
  • Overwhelmed: How to cope with the emotional fall-out of sarcoidosis (Warriors)
  • Overwhelmed: How to cope with the emotional fall-out of sarcoidosis (Caregivers)

5:00 – 5:30 PM Closing

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Location

Online Event

Refund Policy

Contact the organizer to request a refund.

Eventbrite's fee is nonrefundable.

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