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Event Information

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Location

Harvard Medical School Joseph B Martin Center

77 Avenue Louis Pasteur

NRB 133

Boston, MA 02155

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Event description
Celebrating the SDS Registry's 10th anniversary!

About this Event

Please join us for a complimentary day of education, connection, and fun!

- Hear updates from the SDS Registry

- Learn about exciting research

- Discover cutting-edge clinical trials for SDS

- Connect with other SDS families

Please individually register each family member attending this event by August 4th 2019 so we can plan for childcare and meals.

*Children's events will be available on-site*

Lodging:

Your booking link is: SDS Family Day 2019

If you prefer to make reservations by phone please contact The Inn at Brookline at 855-885-0368 with code SDS.

We recommend that individuals call in advance to ensure accommodations as the courtesy rate is based upon availability, and if the Hotel is more than 85% sold-out, the discount will no longer be offered.

*Free shuttle service will be provided between this hotel and Harvard Medical School Joseph B Martin Center

* Draft Event Program listed below.

8:30 AM – 9:30 AM – Registration & breakfast

9:30 AM – Welcome

10:00 AM – 11:45 AM – SDS Registry: Update, Talks and Discussion

11:45 AM – 12:45 PM - Lunch

12:45 PM – 3:00 PM – Talks and Discussion

3:00 PM – 3:15 PM – Break

3:15 PM – 5:00 PM – Family Event

Topics for presentation will include:

• Medical complications in children and adults

• Updates about bone Marrow transplant

• Gastrointestinal issues

• Strategies for leukemia surveillance

• Treatment of MDS and AML

• Gene therapy for SDS

• Living with SDS

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Date and Time

Location

Harvard Medical School Joseph B Martin Center

77 Avenue Louis Pasteur

NRB 133

Boston, MA 02155

View Map

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