$35

Rooting For Rainey 5K Fun Run and Rainey's Spooky Family 1K Fun Run/Walk

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$35

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Grand Saline Elementary School

405 West Stadium Drive

Grand Saline, TX 75140

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No Refunds

Event description
Join us for the Rooting for Rainey 5K/1K Fun Run/Walk benefiting Dr. Comi's Sturge-Weber Research Program at the Kennedy Krieger Institute

About this event

For those not familiar with our story, our daughter, Rainey LaPrade, was born with a Port Wine Stain birthmark over the left side of her face. We were told there was a chance of her having Sturge Weber Syndrome but that only 1 in 3,000 born with the port wine stain have the syndrome. We were encouraged to get an MRI. Rainey had an MRI at 9 days old and everything looked normal. Everything we read about Sturge Weber Syndrome said 90% of kids would present with symptoms by age 2. Our sweet Rainey Claire presented with a 25 minute seizure at 4 months old in September of 2019. She also had a venous stroke during the episode and spent 5 nights at Children’s Hospital in Dallas. We are proud to say medicine has controlled her seizures since October 4, 2019. She has been in physical, occupational, and speech therapy multiple times a week since her episode and has made huge strides. She also has glaucoma (part of Sturge Weber Syndrome) in her left eye and has had one surgery to control her eye pressure. Due to the rarity of this syndrome, limited funds have been raised for research. Our goal is to have an annual fundraiser to support Sturge Weber Research. All proceeds from the Rooting For Rainey 5k/1K Fun Run/Walk will go to Dr. Comi's Sturge-Weber Research Program at the Kennedy Krieger Institute to further support research and development.

Help us with our goal of 300 attendees! You can register through Event Brite or by mailing a form/check to:

Rooting For Rainey 5K at 423 VZCR 1228 Canton, Tx 75103.

The 5K opening ceremony will begin at 9:50. The 5K Fun Run/Walk will begin at 10:00. We will also have Rainey's Spooky Family 1K fun run/walk beginning at 10:15 for those opting for a shorter course (costumes encouraged). We will have a donation based brisket lunch beginning at 11:00 AM. Award ceremony will be announced at 11:00.

**If you are unable to attend the event but would like to contribute to this fundraiser for research you can mail a check to the above address.

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Date and time

Location

Grand Saline Elementary School

405 West Stadium Drive

Grand Saline, TX 75140

View Map

Refund policy

No Refunds

Organizer LaPrade Family

Organizer of Rooting For Rainey 5K Fun Run and Rainey's Spooky Family 1K Fun Run/Walk

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