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REGISTRATION CLOSED!!!! RESCHEDULED: FDA AdComm Meeting to consider Eteplirsen - April 25, 2016

Duchenne Alliance, Parent Project Muscular Dystrophy, CDMD/Be Reasonable at UCLA, the Race to Yes, the Jett Foundation

REGISTRATION CLOSED!!!! RESCHEDULED: FDA AdComm...

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Type Quantity
Public Hearing
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Share REGISTRATION CLOSED!!!! RESCHEDULED: FDA AdComm Meeting to consider Eteplirsen - April 25, 2016

Event Details

On Monday, April 25, an FDA Advisory Committee will meet to consider eteplirsen.  This is a historic moment for our entire Duchenne community.  

We have shown that a united Duchenne community is very powerful.  Let’s stay united and do this together.    

Join us for the Advisory Committee meeting, a community reception the night before, and other events over Sunday and Monday.  We will support you and make it as easy as possible for you to participate.  If you need help with travel expenses, please indicate that on the registration form and we will be in touch.

More details to come as events and logistics are confirmed.  We have been preparing for this moment for years.  We have had to endure delay after delay.  But we are grateful to be part of this incredible community and will continue to press on until everyone with Duchenne has access to safe, effective treatments.

 

LET’S MAKE DUCHENNE HISTORY!

 

TAKE A STAND.  FILL A SEAT.  RAISE YOUR VOICE.

Have questions about REGISTRATION CLOSED!!!! RESCHEDULED: FDA AdComm Meeting to consider Eteplirsen - April 25, 2016? Contact Duchenne Alliance, Parent Project Muscular Dystrophy, CDMD/Be Reasonable at UCLA, the Race to Yes, the Jett Foundation

Where


College Park Marriott Hotel and Conference
3501 University Blvd East
Chesapeake Ballroom
Hyattsville, MD 20783

Organizer

Duchenne Alliance, Parent Project Muscular Dystrophy, CDMD/Be Reasonable at UCLA, the Race to Yes, the Jett Foundation

We represent friends, families, and patients affected by Duchenne Muscular Dystrophy who want to see safe, effective treatments approved by the FDA. Our goal is to help this community participate to the fullest extent possible in the FDA’s Advisory Committee Meetings when they consider treatments for Duchenne.

  Contact the Organizer

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