Rare New England Teen Event
This event is being organized for teens ages 13 to 19 years who are affected by rare and/or complex disorders. The teen years can be challenging but living with a rare disease creates more obstacles to overcome. RNE aims to bring together these teens to find support, give support, and to simply have fun.
Rare New England and The Coalition Against Pediatric Pain, both 501(c)(3) patient advocacy organizations devoted in assisting those affected by rare and complex disorders, are partnering to host a fun evening for the teen community who face challenges living with chronic illnesses.
We will offer music and refreshments, as well as game-playing, in hopes teen attendees will enjoy time together with teens dealing with similar issues while living with symptoms of rare diseases.
How can I contact the organizer with any questions?
Please contact Info@rarenewengland.org with any questions or comments.