Free

PFIC Network Educational Webinar Series

Event Information

Location

Location

Online Event

Refund Policy

Refund Policy

No Refunds

Event description
Please join us for our 2020 PFIC Network Educational Webinar Series.

About this Event

Please join us for our 2020 PFIC Network Educational Webinar Series. This series was put together for families to address educational needs from across the spectrum of PFIC. Topics have a wide range from new diagnosis, to exploring treatment options, to understanding transplant. Our mental health session is designed to help caregivers and patients get the emotional support they need.

PFIC specialists have volunteered their time to educate our community and will be addressing your questions specifically. Each session will be live and consist of a presentation and a Q&A follow up.

PFIC Network has designed this series to help families of this ultra-rare disease better understand the complex nature of this disease and to have the opportunity to ask questions directly to PFIC specialists.

  • Date/Time: Session #1 - PFIC 101 / Genetics PFIC & Subtypes
  • Date/Time: Session #2 - Medical and Surgical Options
  • Date/Time: Session #3 - Life After Transplant / Complications
  • Date/Time: Session #4 - Mental Health

For our 2020 PFIC Network Advocacy Series, please go to https://www.pfic.org/virtual-meeting-series/.

For more information or questions, please email emily@pfic.org

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Zoom

Please note Zoom is not a confidential platform and is not HIPAA compliant. Any disclosure of personal information may be revealed to others in the group, including those not logged into the program. In the private discussions, we expect everyone to respect the confidentiality of who attends and what is shared. By choosing to attend the meeting, you are consenting to participation.

Media Consent

You understand and agree that this event will be videotaped, audiotaped and/or photographed, and that your image/likeness/voice may appear in photos/video/audio taken during the event. By registering for this event, you hereby consent to any use, reproduction or publication of any photos/video/audio (or excerpts thereof) containing your image/likeness/voice by or on behalf of PFIC.org (and its representatives) for any promotional, educational or general purposes related to PFIC.org’s mission, including in websites, social media or other means. You hereby waive all rights to any claims for payment or royalties in connection with such use, copying or publication, as well as any right to inspect or approve any photo, video, or audio recording taken by or on behalf of PFIC.org (or its representatives), and you acknowledge and agree that neither PFIC.org (nor its representatives) will have any obligation to seek further permission nor notify you before making use of such media or any excerpts of such media.

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Location

Online Event

Refund Policy

No Refunds

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