$10 – $150

PEDIATRIC WEBINAR SERIES - Creative Conversations: Advance Care Planning in...

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The 2019 Pediatric Webinar Series is presented in collaboration with the Pennsylvania’s Pediatric Palliative Care Coalition (PPCC) and Greater Illinois Pediatric Palliative Care Coalition (GIPPCC).

Caring for infants, children, adolescents and young adults with serious illnesses is challenging, especially when defining goals of care. Advance care planning (ACP) can be complex due to multiple factors, such as surrogate decision makers, developmental changes over time, uncertain trajectories of pediatric serious illness, and lack of knowledge regarding how to begin ACP conversations. Challenges also include how to talk with parents/guardians who may be young themselves with little experience with death, and often ACP discussions need to happen multiple times due to developmental and disease changes. This webinar will discuss creative ways to engage patients and families in discussions to document goals of care and how to mitigate challenges in ACP.

$40 Individual Registration / $150 Organization Registration

Complimentary registration is available for parents. Contact Kristen Bond, kbond@coalitionccc.org, for a special discount code.

1 CEU included for nurses and social workers.


Webinar participants will be able to:

  • Define the similarities and differences between advance care planning, advanced directives and Medical Orders for Life Sustaining Treatments (MOLST)/Physician Order for Life Sustaining Treatments (POLST)\

  • Define terminology frequently used when discussing resuscitation status with patients and families

  • Discuss strategies for children, adolescents and young adults to discuss and document goals of care

  • Identify strategies for non-verbal and neurologically impaired


FACULTY:

Deborah A. Lafond, DNP, PPCNP-BC, CPON, CHPPN, FHPN

Clinical Director
Palliative Care Team
Children’s National Health System
Washington, DC

Dr. Debbie Lafond is a board-certified Hospice and Palliative Pediatric Nurse and is the Clinical Director of the PANDA Palliative Care Team at Children’s National Health System in Washington, DC. She has been an active APHON member since 1990 and is the past chair of the APHON Evidence Based Practice and Research Committee. She completed her DNP studies in 2012 at the University of Maryland with a research focus in early integration of palliative care in pediatric hematopoietic stem cell transplant. She was selected as a Sojourns Scholar in palliative care with the Cambia Health Foundation in 2015. Dr. Lafond’s current projects include participating as a co-investigator with Dr. Pamela Hinds on an RO1 funded study titled “Being a Good Parent to My Seriously Ill Child” and investigating the experience of primary palliative care on families and clinicians using photovoice methodology.


Kathy Perko, RN, MS, PPCNP-BC, CPON, CHPPN, CPLC, FHPN

Program Director
Bridges Pediatric Palliative Care
OHSU Doernbecher Children’s Hospital
Portland, Oregon

Kathy Perko is a pediatric nurse practitioner and the Program Director of Bridges Palliative Care at OHSU Doernbecher Children’s Hospital in Portland, OR. Kathy is both an ELNEC and EPEC (Education in Palliative and End of Life Care-Pediatrics) national trainer. She is certified in Pediatric Hospice and Palliative Care and Perinatal Loss Care (through NBCHPN). In her role as Program Director of the Bridges Program, she provides pain and symptom management, as well as, psychosocial and spiritual support to children and their families, and facilitates conversations about palliative and end of life care with care providers both in the hospital and the community. Ms. Perko has authored chapters in the Pediatric Oncology Palliative and End-of-Life Care Resource manual, published by APHON. And she is well known locally and nationally as a speaker in pediatric palliative care.



CONTINUING EDUCATION

Full attendance at the live webinar (you must attend a minimum of 50 minutes) is a prerequisite for receiving professional continuing education credit. Attendees requesting CEU credit must each call into the webinar individually using the call-in number and computer link from the instruction email for attendance to be documented. If this is not done, there is no official documentation of attendance, and CEU credit cannot be granted for this webinar. Organizations who wish to show the live webinar to a group of staff can purchase the organization registration and work with CCCC staff to get sign-in sheets in order for attendance to be documented for CE purposes.

Everyone who wishes to receive CEs is also required to complete an online survey within 30 days following the webinar. A link to the evaluation will be provided in an email sent within 24 hours following the webinar. The email will also include links to the presentation recording and slides. Certificates will be sent via email.

Nursing: Provider approved by the California Board of Registered Nursing, Provider #CEP 15403, for one (1) contact hour.
Social Work: Course meets the qualifications for one (1) hour of continuing education credit for LMFTs, LCSWs, LPCCs and/or LEPs as required by the California Board of Behavioral Sciences. CCCC is approved by the California Association of Marriage and Family Therapists to sponsor continuing education for LCSWs and LMFTs, Provider #91987.
Chaplains – This program may be used for continuing education credit for chaplains certified with the Board of Chaplaincy Certification Inc.


CANCELLATION POLICY
Cancellations must be made in writing no later than three (3) business days prior to the webinar, and faxed to (888) 789-9475 or e-mailed to info@CoalitionCCC.org, to receive a full refund. No refunds will be made after this date. Substitutions are encouraged and can be made by calling (916) 489-2222.

ANY QUESTIONS?
CCCC maintains responsibility for this course and its content. Please contact us at (916) 489-2222 or email info@coalitionccc.org with any questions, to address a grievance, or to request special ADA accommodation needs.

Note: When registering, please use the email address of the person attending the webinar.

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