$10 – $150

PEDIATRIC WEBINAR SERIES - Compatible with Life: Rethinking Care of Childre...

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A collaboration between Children's Hospice and Palliative Care Coalition, a division of Coalition for Compassionate Care of California, Pennsylvania's Pediatric Palliative Care Coalition (PPCC) and Greater Illinois Pediatric Palliative Care Coalition (GIPPCC), the 2019 Pediatric Palliative Webinar series was created to raise the visibility of pediatric palliative care in the United States and to build clinicians' competencies and confidence in providing care to children.

Many patients diagnosed with Trisomy 18 are living longer than once predicted. What has changed in this population? This session will highlight current research on Trisomy 18 and explore opportunities for providing meaningful care in a patient population fraught with difficult decision-making and uncertain outcomes.

$40 Individual Registration / $150 Organization Registration

Complimentary registration is available for parents. Contact Kristen Bond, kbond@coalitionccc.org, for a special discount code.

1 CEU included for nurses and social workers.

Webinar participants will be able to:

1.) Describe clinical features and contemporary outcomes for children with Trisomy 18

2.) Discuss factors influencing decision-making for both families and professionals

3.) Identify challenges in providing medical care to children with Trisomy 18 that is congruent with the family’s identified goals


Nicole C. Hahnlen, RN-BC, CHPPN
Hummingbird Program
Penn State Children's Hospital

Nicole Hahnlen is the nurse coordinator of Hummingbird Program, the pediatric palliative care program at Penn State Children’s Hospital. She is an executive board member of the Pediatric Palliative Care Coalition. Nicole holds a B.S. in nursing from the Pennsylvania State University and a B.A. in family studies from Messiah College.

Deana Deeter, CRNP, CHPPN, CPON
Hummingbird Program Manager
Penn State Children’s Hospital

Deana Deeter graduated from The Ohio State University with MS in Nursing in 2006 and Bachelors in Agriculture in 2003. Deana worked for 8 years as a nurse practitioner in pediatric palliative care, and prior to that worked for almost 5 years as a nurse practitioner in pediatric hematology/oncology. Deana completed the Pediatric ELNEC Train the Trainer program in 2009, and have taught portions of the course for the past 6 years. She holds certifications in pediatric hospice and palliative nursing (CHPPN), pediatric oncology nursing (CPON), and pain management nursing (RN-BC).


Full attendance at the live webinar (you must attend a minimum of 50 minutes) is a prerequisite for receiving professional continuing education credit. Attendees requesting CEU credit must each call into the webinar individually using the call-in number and computer link from the instruction email for attendance to be documented. If this is not done, there is no official documentation of attendance, and CEU credit cannot be granted for this webinar. Organizations who wish to show the live webinar to a group of staff can purchase the organization registration and work with CCCC staff to get sign-in sheets in order for attendance to be documented for CE purposes.

Everyone who wishes to receive CEs is also required to complete an online survey within 30 days following the webinar. A link to the evaluation will be provided in an email sent within 48 hours following the webinar. The email will also include links to the presentation recording and slides. Certificates will be sent via email.

Nursing: Provider approved by the California Board of Registered Nursing, Provider #CEP 15403, for one (1) contact hour.
Social Work: Course meets the qualifications for one (1) hour of continuing education credit for LMFTs, LCSWs, LPCCs and/or LEPs as required by the California Board of Behavioral Sciences. CCCC is approved by the California Association of Marriage and Family Therapists to sponsor continuing education for LCSWs and LMFTs, Provider #91987.
Chaplains – This program may be used for continuing education credit for chaplains certified with the Board of Chaplaincy Certification Inc.

Cancellations must be made in writing no later than three (3) business days prior to the webinar, and faxed to (888) 789-9475 or e-mailed to info@CoalitionCCC.org, to receive a full refund. No refunds will be made after this date. Substitutions are encouraged and can be made by calling (916) 489-2222.

CCCC maintains responsibility for this course and its content. Please contact us at (916) 489-2222 or email info@coalitionccc.org with any questions, to address a grievance, or to request special ADA accommodation needs.

Note: When registering, please use the email address of the person attending the webinar.

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