Oxford Neuromuscular Service Annual Conference - DMD & BMD

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Oxford Neuromuscular Service Annual Conference - DMD & BMD

Oxford Neuromuscular Service presents a conference addressing Duchenne and Becker muscular dystrophies. Sponsored by PTC.

When and where

Date and time

Location

St Anne's College 56 Woodstock Road Oxford OX2 6HS United Kingdom

Map and directions

How to get there

About this event

Oxford Neuromuscular Service Annual Conference - DMD & BMD image

Agenda

09:15 Registration and Coffee / Tea

Session 1

Chair: Prof. Laurent Servais

09:45 – Introductions and welcome (Prof. Laurent Servais, Consultant Neurologist, OUH / STRONG)

09:50 – Diagnosis and management of the child with DMD & BMD (Dr Sithara Ramdas, Consultant Paediatric Neurologist, OUH)

10:15 – Management of the adult with DMD & BMD (Dr Stephen Brady, Consultant Adult Neurologist, OUH)

10:45 – Current treatments in DMD (Dr Mario Sa, Consultant Paediatric Neurologist, OUH)

11:00 – Break

Session 2

Chair: Charlotte Lilien

11:15 – Standards of care for DMD - focusing on the MDT (Frankie Taylor & Megan Wisson, Neuromuscular Physiotherapists, OUH; Emily Carter – Occupational Therapist, NHFT; Claire Blair – Specialist Speech and Language Therapist, OUH; Rachael Marsden – Nurse Specialist, OUH)

12:00 – Supporting patients and families with DMD & BMD (Heather Ryan, Adult Family Care Advisor; Rebecca Moore, Paediatric Family Care Advisor)

12:15 – Clinical trials in DMD (Prof. Laurent Servais)

12:45 – Lunch & Networking

Session 3

Chair: Dr Louisa Kent or Dr Gemma Fisher

13:30 – Respiratory management of DMD (Dr Anabel Nichol, Consultant Respiratory Physician, Lead Oxford Sleep and Ventilation Service, OUH)

13:50 – Cardiac management of DMD & BMD (Dr Satish Adwani, Consultant Paediatric Cardiologist, OUH)

14:10 – Palliative care in DMD (Dr Emily Harrop, Consultant in Paediatric Palliative Care, Helen & Douglas House)

14:30 – Coffee

Session 4

Chair: Hayley Ramjattan

15:00 – Living with DMD - Adult (patient representative)

15:15 – Living with DMD - Paediatric (patient representative)

15:30 – Break out session

  • Adult focus (Dr Stephen Brady & Laura Room)
  • Paeds focus (Dr Sithara Ramdas & Hayley English)

16:00 – Wrap up & close (Dr Sithara Ramdas or Dr Stephen Brady)