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Meeting 1: Addressing Sickle Cell Disease: A Strategic Plan and Blueprint f...

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National Academy of Sciences Building

2101 Constitution Ave NW

Washington, DC 20418

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February 21, 2019 from 1pm - 5pm ET

The National Academies of Sciences, Engineering, and Medicine Committee on Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action will hold its first open session as part of information gathering activities.

The session will feature invited presentations from several experts on the following topics:

  • The official charge to the committee from the study sponsor, the Office of the Assistant Secretary of Health and the Office of Minority Health.
  • The history of sickle cell disease in the U.S., underscoring the sociopolitical factors that have shaped the evolution of the disease.
  • An overview of the epidemiology of sickle cell disease in the U.S.
  • A discussion of clinical complications associated with the disease and approaches to care delivery and management for patients with sickle cell disease.
  • A discussion about the role of advocacy in improving care and outcomes for patients with sickle cell disease and their families.
  • An overview of current and innovative therapeutic approaches for sickle cell disease.

The session will be accessible to the public via live webcast and in-person attendance (limited seating). Please register to attend the public session in-person or via live webcast.


More information about this session, including agenda and speakers will be forthcoming.

To learn more about this study, please click here.



Please note that events listed in the "Events You May Like" section may not associated with or endorsed by the National Academies of Sciences, Engineering, and Medicine.

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Location

National Academy of Sciences Building

2101 Constitution Ave NW

Washington, DC 20418

View Map

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