San Francisco, California
London, United Kingdom
A conference for children, teens and young adults with diabetes and their families
Children’s Hospital of Philadelphia is hosting the seventh annual diabetes conference for families — Living Well with Diabetes: Now and in the Future. This conference is for children, teens and young adults with diabetes and their caregivers, families and friends. We hope you'll join us for a day of education and inspiration for all families who have a loved one with diabetes.
Come and meet keynote speaker Mike Avery, a Hollywood stunt man with type 1 diabetes who has also participated in an Ironman Triathlon as well as coaching for Riding on Insulin.
With the new artificial pancreas technology coming out soon, learn from Fran Kaufman, MD, about this game changing advancement that will impact your diabetes management.
- 8:00 a.m. — Registration and Continental Breakfast
- 8:45 a.m. — Welcome and Introduction
- 9:00 a.m. — Keynote Address by Mike Avery, Hollywood stuntman and Ironman contestant
- 10:00 a.m. — Break with Exhibits
- 10:30 a.m. — Fran Kaufman, MD, “The Artificial Pancreas: what we have now and what is still to come” (Children ages 9 to 12 may attend Tween session 1)
- 11:30 a.m. — Lunch and Exhibits. Meet with other families who have a child with diabetes the same age as your child. (Carbohydrate counts and gluten-free meals will be available.)
- 12:45 p.m. — Afternoon Breakout Session (choose one)
- The Reality of Living with a Continuous Glucose Monitor (CGM)
- Diabetes Burn-out: When the going gets tough
- What the Law says about Diabetes and Your Child’s Care at School
- High School and Collegiate Competitive Athletes: Managing your diabetes to reach your personal best!
- Tween session 2 (there are two tween sessions this year — both in the morning and in the afternoon)
- 1:45 p.m. — Conference ends
Break out sessions descriptions
The Reality of Living with CGM. The Continuous Glucose Monitor is an extremely helpful tool in controlling blood sugars, with blood sugar results taken every five minutes. But can this be too much information? Join our panel with Regina Taddeo, MA, RN, CDE, RD, Kelly Lord, RD, CDE, LDN, Julie Gettings, PhD, and Brian Grant, RN, CDE, to explore how to get the most out of a CGM while maintaining one’s sanity.
Diabetes Burn-out: When the going gets tough. With the endless attention needed for diabetes care, there is no vacation from diabetes management. As a person with diabetes or someone caring for a person with diabetes, you know the laborious care needed — day in and day out. Join Whitney Guerry, PhD, and Brie Dorian, LCSW, in this session to explore diabetes burn-out and learn how you can cope through building a support network, humor and other strategies.
What the Law says about Diabetes and Your Child’s Care at School. As a parent and caregiver, you want to ensure your child’s diabetes is carefully managed in school. What do you do though if you are told that there is no nurse available or no one to oversee diabetes care? Learn from Juan Lado, MD, about the law and how to advocate for your child’s healthcare needs while at school.
High School and Collegiate Competitive Athletes: Managing your diabetes to reach your personal best! This is a unique workshop specifically for teen athletes focusing on customizing management of blood sugars and nutrition for best sports performance. Real-life case studies analyzing each participant’s blood sugar trends as well as suggestions for insulin management and best nutrition before, during and after sports will be discussed in a small group setting to personalize the diabetes experience. Come learn from our diabetes sports experts, Melissa Rearson, MSN, CRNP, and Megan Robinson, MS, RD, CDE, LDN, and other athletes with diabetes! Class size will be limited to 20 teen athletes.
Tween Program (for children ages 9 to 12). Helping your child learn to manage their blood sugars is a long process and includes teaching skills, ways to cope, and keeping perspective (those are just a few of the highlights!) This year’s conference offers two tween sessions. The first tween session (10:30 – 11:30 a.m.) offers both diabetes education and a fun time meeting with others with type 1. The second tween program (12:45 p.m. - 1:45 p.m.) gives them an opportunity to experience how various levels of activity impact blood sugar levels. Your child can attend one or both of these sessions led by Ken Rodenheiser, RN, CDE.
This year's conference will be held in the Stokes Auditorium at Children's Hospital of Philadelphia's Main Campus, a walking distance from University City Septa Station. A discounted parking pass of $5 for the day will be available for purchase upon arrival at registration.
Register now for early-bird discount. Price is $30 through March 8. After March 8, price increases to $35. Registration deadline is April 15, 2017. Space is available on a first-come, first-served basis. Register early!
Cancellation and refund policy
Children’s Hospital of Philadelphia (CHOP) reserves the right to cancel or postpone the conference due to any unforeseen circumstances. If you wish to withdraw from the event, please send a cancellation letter by March 7, 2017, to:
Children’s Hospital of Philadelphia
Diabetes Center for Children, 11NW 30
3401 and Civic Center Blvd.
Philadelphia, PA. 19104
Attn: Beth Qualtieri
In the event of cancellation, postponement or withdrawal, CHOP will refund any registration fees, less a $15 service charge. No refunds will be issued after March 7, 2017.
Every year the Diabetes Center creates a video highlighting the successes of children living with type 1 doing the things they love to do. If you would like to have a photo of your child, teen or young adult included in this year’s Living Well with Diabetes video, please send a photo (jpeg) to Judy Ayala, LCSW, CDE, at firstname.lastname@example.org. When sending your photo, please include the age of your child along with a caption, such as what he or she is doing in the picture.
Deadline is March 1, 2017, or as soon as possible. (Note: Landscape shots work best!)
Contact Beth Qualtieri at 267-426-0271 or email Judy Ayala at email@example.com.
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When & Where
Diabetes Center for Children at CHOP
The Diabetes Center for Children (DCC) at The Children's Hospital of Philadelphia is one of the largest centers in the country dedicated to the treatment and study of diabetes in children.