$50

Layla Taking Charge

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La Vecina Arepas

30-66 Steinway Street

Queens, NY 11103

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I want to start off by thanking everyone for all their continuous donations and support toward Layla Rose's cause. Layla Rose was born with CHARGE syndrome (The name “CHARGE” was a clever way (in 1981) to refer to a newly recognized cluster of features seen in a number of children. Over the years, it has become clear that CHARGE is indeed a syndrome and at least one gene causing CHARGE syndrome has been discovered. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and development, and Ear abnormalities and deafness.). She was also born with no T-Cell (absent Thymus). She does not have an immune system to fight any type of infections or sickness.

In the first year of her life, Layla had one heart procedure, one open heart surgery, ear tubing surgery and GI surgery (which was for her feeding tube). Now, we are on our way to Duke University for the Thymus Transplant in just a few short weeks. We will be relocating for a couple of months for the surgery and outpatient services. Layla's insurance will cover most of the procedure, except the transportation and all of her inpatient admission.

To raise the remaining funds, I will be hosting a fundraiser on Tuesday, December 5th to help Layla take CHARGE. We will be raffling amazing prizes and experiences; and a list of all of our raffle items will be provided before the event. All the proceeds made that evening will be donated to Layla taking CHARGE, and will help me with her medical expenses, transportation and cost of relocation while we are in North Carolina.


Once again thank you all for your support, and helping with us get to the next step of Layla taking CHARGE; we truly appreciate all of your help.

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La Vecina Arepas

30-66 Steinway Street

Queens, NY 11103

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Refund Policy

No Refunds

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