Jacob's Legs "Motors for Muscles" an MDA Event

Event Information

Share this event

Date and Time

Location

Location

Scentsy, Inc.

2701 East Pine Avenue

Meridian, ID 83642

View Map

Event description
Come join us to celebrate our communities special MD children and see some the best hot rods and classic cars in the valley

About this Event

Jacob’s Legs - The Journey

My son, Jacob James Carrier, was born on October 27, 2001. Jacob’s birth was a little exciting due to a wrapped umbilical cord. But the doctor intervened without hesitation and within moments my wife Brenda and I had or second beautiful addition to this world in our arms. Jacob from appearances was a normal health baby boy.

At 3 months Momma and Jacob had to send a nervous night in the hospital together due to a very bad case of RSV. This is where our story begins. The pediatric doctor on call made and observation that when he held Jacob on with his hand on his tommy Jacob would just hang there limply (hypotonic). The doctor described that Jacob, at 3 months, should be able to hold himself out like superman flying. This news was somewhat unsettling to us, but we had server RSV to deal with at the moment, so we moved on.

As Jacob progressed through the next couple of years it became very clear that there was something very significantly wrong with him. He could not nurse without holding his head. He did not even try to walk until after the age of 2. He was a great roller. I remember a time when he set his eyes on something across the very large yard we had, and he rolled himself the entire yard to get there. Little did we know at the time that his internal will and determine is what was going to help him with so many aspects of growing while living with muscular dystrophy.

It was at about the age of 2 years old that we began our efforts to find out what could be wrong with our beautiful Jacob. It took 8 years 9 different doctors and medical specialists before we walked into Dr Freidman’s (Dr Bob) office at St. Luke’s Rehab Hospital. We were at our wits end by this time. The Medical community seemed to be unable to help our son and we were becoming very discouraged. Jacob had very little energy and was not able to keep up on any developmental fronts. Public school was very challenging due to not having any diagnosis, so services were limited. Our hearts where break at this time as we had no answers and did not think we where going the find one. Ten minutes after Dr Bob walked into the room he looked at us and said he new what was wrong with Jacob. A muscle biopsy was order and was sent to only one lab in north America that can run mitochondrial enzyme analysis. We had our diagnosis, Mitochondrial Myopathy (Mito).

We could final exhale. For a very short period of time we felt relief. But this soon gave way back to worry and desperation as we realized we had a diagnosis but there was nothing that could be done. Jacob had a life sentence in a body that could never serve him physically and as we learned about the disease many other physical difficulties could coming down the road and even death is a possibility. I can attest to this now as I have been personally known 3 children who lost their battles with Mito over the years. We were frightened and alone. Then the wonderful people from Muscular Dystrophy Association (MDA) came along.

As is the mission of the MDA, they welcomed us with warm and open arms. A family scared, lost and without a compass to navigate this most difficult journey. As we began to learn of all the wonderful services that they provide for these families and children suffering from these devastating diseases we learned of MDA Camp. OMG what a wonderful event this is. The MDA provides an amazing 6 day camp in McCall for all of the MDA children in the region. The camp is staffed with wonderful young college students wanting to make a difference, doctors nurses and of course the dedicated women from our local MDA office. What a party they put on for these kids for the week. And by the way no parents allowed. Each child has a one on one counselor. For most these children this camp is the highlight of each year, maybe their lives, as the remaining 51 weeks are a difficult ongoing struggle.

It was at this time Jacobs Legs was born. When I began immersing myself in this special community and seeing the struggles and the deaths first hand I had to do something. I had been called spiritually to help. Jacob’s Legs began as a family fund raising team raising financial gifts for the MDA Muscle Walk event. This a very special day when many families affected by muscular dystrophy come together for a wonder event full of the most precious children and families you will ever meet. With tremendous support from our friends and my business associates Jacob’s Legs has raised nearly $30,000. Now Jacob’s legs has evolved into specially built highly modified tribute 1969 Firebird muscle car named “Jacob’s Leg Muscular Dystrophy Muscle Car”. It has been a 6 year build with my oldest son Josh. The Jacob’s Legs Muscle Car will be campaigned all spring, summer and fall to spread awareness and work to raise gifts for the MDA in the name of my son Jacob. The campaign will end every year with a Jacob’s Legs Muscular Dystrophy Muscle car show on the day and same venue of the Muscular Dystrophy Muscle Walk. The finally of the yearly campaign will be what I have coined as “Thunder Ally”. At the start to the walk our car show friends will start a rev their powerful motors as the families walk through thunder alley on their way to a half mile walk.

Please consider joining us at the show or donating directly to the MDA through the Jacob’s Legs portal on the MDA website at mda.donordrive.com/team/JacobsLegs

Sincerely,

Jacob’s Father

Share with friends

Date and Time

Location

Scentsy, Inc.

2701 East Pine Avenue

Meridian, ID 83642

View Map

Save This Event

Event Saved