$30 – $60

Interprofessional Perspectives on Care for Persons with Rett Syndrome

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Monmouth University, Woodrow Wilson Hall

400 Cedar Avenue

West Long Branch, NJ 07764

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This all-day session, featuring an interprofessional panel of experts in Rett syndrome, is designed for both parents and professionals. Speakers will describe recent developments in research and provide an update on issues related to care and quality of life along with information on related medical conditions common in girls with Rett syndrome. Sessions on physical therapy, nursing needs, gastroenterology and communication and AAC strategies for persons with Rett syndrome will be featured. Experts will discuss evidence-based strategies on how to increase interaction and communication potential in this population. Classroom teachers, speech-language pathologists, occupational therapists, physical therapists, and other educational and medical specialists will learn valuable information that will assist their work with girls with Rett syndrome. Family members will gain valuable insight on strategies they can use with their girls, and can share with professionals who help care for their daughters.

8:30—9:15: Registration / Light Breakfast

9:15—9:30: Dean John Henning

“Welcome Remarks”

9:30—10:00: Patricia Remshifski, PhD, SLP

“The Program for Research & Support for Rett Syndrome”

10:00—10:30: Steven Kaminsky, PhD

“Recent Advances in Rett Syndrome Research”

10:30—10:45: Break

10:45—11:15: Joan Raso, MSN, RN

“Nursing Update on Rett Syndrome”

11:15—12:00: Theresa Bartolotta, PhD, SLP

“International Clinical Guidelines for the Management of Communication in Individuals with Rett Syndrome”

12:00—1:00: Buffet Lunch

1:00—1:45: Carl Raso, MD

“Gastroenterology Perspectives in Rett Syndrome”

1:45—2:15: Dave Bertone, PT, DPT, OCS

“Rett Syndrome Advanced Rehabilitation Program to Improve Quality of Life and Functional Improvement”

2:15—2:30: Break

2:30—3:15: Travis Tallman, MS, SLP

“Augmentative Communication Update for Individuals with Complex Communication Challenges”

3:15—4:00: Q & A Panel

.5 CEUs (Intermediate Level, Professional Area) American Speech-Language-Hearing Association (ASHA).

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Location

Monmouth University, Woodrow Wilson Hall

400 Cedar Avenue

West Long Branch, NJ 07764

View Map

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