Integrating Congenital Conditions into Maternal and Child Health Programs

Join us to collaborate with experts and advocates in championing transformative change for those impacted by congenital conditions.

By Children's HeartLink

Date and time

Monday, May 19 · 7:30 - 9:30am CEST

Location

John Knox International Center

27 Chemin des Crêts-de-Pregny 1218 Le Grand-Saconnex Switzerland

Agenda

Untitled agenda

7:30 AM

Welcome & Introductions

7:35 AM

Reaching Childhood Survival Targets: Addressing Congenital Conditions

7:45 AM

The Role of Governments in Addressing Congenital Conditions

8:05 AM

Patient Advocates: Creating Awareness and Accountability

8:30 AM

WHO Framework on Newborn Screening, Diagnosis, Management and Treatment

8:40 AM

Integrating Congenital Conditions in MNCH Programming and Advocacy

9:00 AM

Audience Q&A

9:25 AM

Closing Remarks

About this event

Event lasts 2 hours

Building Healthy Futures: Integrating Congenital Conditions into Maternal and Child Health Programs

At WHA 77 Member States adopted a resolution responding to slowing progress in tackling maternal, newborn, and child mortality and for the first time called out congenital conditions as a key driver of childhood mortality that needed to be addressed. With childhood mortality reduction efforts stagnating, now is a critical moment for NGOs, patient and family advocates and policy makers to unite and advocate for the investment and integration of congenital conditions into maternal and child health programs.

We invite you to join us for a dynamic discussion with patient and family advocates, leading NGOs, government representatives, and WHO experts who will highlight the work the WHO has been doing to bring more attention to congenital conditions, including estimating the global burden of birth defects and developing a new policy framework for newborn screening, diagnosis and management of congenital conditions. This event will make the case that now is the time to ensure that children born with congenital conditions survive and thrive.

Can't join us in person? Join us virtually: https://us06web.zoom.us/webinar/register/WN_2Xsak6hpRGajf0mybmk5jg#/registration

Organized by

Children's HeartLink

On a mission to save children’s lives

Every child deserves the opportunity to grow and thrive. Together, we must work toward a world where all children have access to high-quality heart care. Children’s HeartLink, a Minnesota-based non-profit founded in 1969, works to save children’s lives by improving pediatric heart care programs in Asia and South America. Here’s how we do it:

Build local-level capacity for pediatric cardiac care through long-term partnerships and robust monitoring
Optimize patient care using education and a train-the-trainer model
Advocate for better access to care with governments and stakeholders
Sustain access to quality care through Centers of Excellence

Learn more about us.