Inaugural HLH awareness and charity event.
Event Information
Description
This event is a gathering of communities with a opportunity to raise awareness for a very rare disease that has touched us in our community personally. This event will Feature A Car Show, a bully breed dog show, live music, live performances, outdoor BBQ vendor, Beer Garden and indoor full service restaurant and bar. We are making arrangements to add wine tasting also. This will be a fun place to be not only for adults but also for the kids with a kid Zone Bounce House area, face painting and more. We have teamed up with the histiocytosis association for this event and a portion of the proceeds from this event will be donated towards Education and Research for HLH in the remaining will be used to assit our organizations JOURNEY and to continue this annual event.
Organizer Journey of the Bullies
Organizer of Inaugural HLH awareness and charity event.
Journey of the bullies was founded and formed 9/19/17 on Journeys birthday by her father Emiliano Banda. Emiliano had a goal to organize a charity and awareness event combining all the communities Journey had touched and who had reached out to them in their dark time. From there the ideas and opportunities grew. Journey of the bullies will host an annual inaugural HLH awareness and charity event. We will also be hosting fun runs, bike runs, fundraisers at restaurants wineries and more all well educating the community about our rare disease HLH. Journey of the bullies also provides services and resources for families in need who have lost a loved one or is suffering from this deadly disease. We have teamed up with the Histiocytosis Association to provide more resources and information about HLH. Help us help families. Contact us to see how you could be a part of our team and join our Journey.
