Scholarships are now available!! Please call 802-847-4557 or email info@rarenewengland.org to apply!

Rare New England and University of Vermont Children's Hospital are partnering to host a conference to provide information to a target audience of patients and families who are living with rare and complex disorders.

RNE's mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life.

As Vermont’s Academic Medical Center, the UVM Children’s Hospital and the University of Vermont College of Medicine partner in delivering patient care grounded in the latest research while serving as educators and mentors.

There will be a wide range of speakers covering topics such as how to navigate the insurance world with a rare disease, navigating the school system with a rare disease, managing a complex disease in a complex health system, genetics and genomic testing, patient and family centered care, and resources available to the rare disease community.

Conference registration fees cover cost of a light breakfast as well as a boxed lunch.

A child watch will be available with fall themed arts and crafts activities. There will also be games and other activities sure to keep the little ones entertained for the day!

For more information on the event, to review agenda, or for an event flyer please visit http://www.rarenewengland.org/RNE-UVM-Conference-2017.html

We thank our great sponsors!

FAQs

How can I contact the organizer with any questions?

Please contact Julie Gortze (julie@rarenewengland.org) or Allison Wood (allison@rarenewengland.org) with any questions.

What's the refund policy?

You can get a 100% refund up to 7 days before the event.

Do I have to bring my printed ticket to the event?

No, you do not need your printed ticket for the event. We will have your information and match upon sign-in.

Can I update my registration information?

Yes

Is my registration fee or ticket transferrable?

Yes

Is it ok if the name on my ticket or registration doesn't match the person who attends?

Yes, please bring a copy of the ticket with you.

What can I bring into the event?

We will do our best to accomodate special diets, however, please do bring your own foods if you have concerns about true food allergies or avoidances.

Children attending the children's room activities should bring a small blanket or towel for sitting on the hard floor.

Where do I park for the event?