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Henry's HOPEful Walkers - HOPE on the Horizon Walk in Scottsdale, Arizona
Sat, April 15, 2017, 8:00 AM – 11:00 AM MST
One step at a time, we can make an impact in the lives of those who struggle daily with an eosinophil associated disease.
Join us for APFED’s Hope on the Horizon Walk in Scottsdale, AZ, April 15, 2017 at 8:30 AM and make a difference by helping to raise funds for research and awareness for these diseases. Registration opens at 8:00 AM
Proceeds from the walk will support APFED’s Hope on the Horizon Research Fund, which provides grants to investigators to pursue unique research ideas that could lead to less invasive diagnostic measures and more effective treatments for those suffering from eosinophil associated diseases.
This walk was organized to honor a young, EoE fighter named Henry and all the other patients and families in Arizona struggling with Eosinophilic Disorders.
A Special Message from Henry's parents, Kelly & Justin:
Snuggled in his jammies while watching the “Toy Story” Pizza Planet car chase for the hundredth time, Henry asks, “Momma, can I eat pizza?” Mom answers back quietly, “No baby, you can’t.” Henry is 18 months old and has never tasted pizza. He’s also missed out on birthday cake, Christmas cookies and his grandma’s macaroni and cheese. When he tries to eat, he gets very sick.
After vomiting multiple times a day since birth, Henry had his first endoscopy at 13 months of age and was diagnosed with Eosinophilic Esophagitis (EoE), a chronic allergic inflammatory disease of the esophagus. EoE causes the esophagus to swell, making it very difficult, if not impossible, to eat. EoE can result in slow growth and chronic pain and in severe cases some have to rely on a gastronomy tube for their daily sustenance. Henry is currently living on a formula-based diet and is in constant discomfort.
Though Henry isn’t able to have the foods most of us take for granted, what he does have is hope. Hope that we can find a treatment for EoE that will help children like him live healthy lives, free from the pain of EoE. We’d love to have your help in making this dream come true.
Please join us for - Hope on the Horizon - Scottsdale, AZ
The great thing about kids is that they help us remember how important hope is to all of us. Thank you for helping us raise awareness of EoE and bringing us closer to a successful treatment. All our kids deserve a chance to dream and, as Woody would say, “Reach for the stars!”
To register for the walk, click the green "Get Tickets" button in the upper right hand corner. This is also where you can order your t-shirt. Be sure to register by April 3rd to be guaranteed your walk shirt on event day. There will be a limited supply of t-shirts available for purchase at the walk as well.
Can't join us on walk day but would like to make an online donation? You can make a secure, tax deductible donation on this site as well.
We walk rain or shine!
Thank you for your generous support of APFED