FXS VIRTUAL Workshop with Dr. Jennifer Epstein

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Virtual Workshop via ZOOM

CA 90806

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We are THRILLED to have Dr. Jennifer Epstein join us VIRTUALLY on Sunday, May 3, 2020 from 1-5pm for a workshop on Fragile X!!!!!!!

If you are not familiar with Dr. Jennifer Epstein she is a licensed clinical psychologist and co-owner of South Shore Psychological Services, LLC, in Hingham, MA, with more than 20 years of experience working with children and families. Dr. Epstein specializes in the treatment of neurodevelopmental disorders including delays in development, autism spectrum disorders and genetic disorders such as Fragile X Syndrome. She has provided numerous lectures on the application of behavioral techniques within school settings. She has also lectured nationally and internationally on the topic of Fragile X Syndrome.


This workshop is designed to support the needs of individuals with Fragile X Syndrome and their caregivers. Dr. Epstein’s presentations will review toilet training across the life span, demonstrate interventions to manage anxiety and hyperarousal, and provide practice in stress management techniques. Attendees will learn practical strategies and supports designed to improve the quality of life for individuals with FXS and their families by emphasizing identification of feelings and the use of predictable routines, visual supports and calm down strategies to decrease maladaptive behaviors.

Date: May 3, 2020

Time: 1 pm to 5 pm

1:00 to 2:00 An Overview of Toilet Training Strategies for individuals with FXS across the life span

2:00-2:45 Taking Control of Anxiety: What Works and Why?

2:45 – 3:00 Break

3:00 to 3:45 Feelings, routines, visual supports, and calm down strategies

3:45 to 4:30 Helping Caregivers Manage Stress

4:30 to 5:00 Questions






Date and time

Location

Virtual Workshop via ZOOM

CA 90806

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Organizer Fragile X Association of Southern California

Organizer of FXS VIRTUAL Workshop with Dr. Jennifer Epstein

The Fragile X Association of Southern California was formed in 1996 to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and support scientific research on Fragile X Syndrome. We are run entirely by volunteer parents of children with Fragile X Syndrome, and are a California non-profit organization.

Though our official mailing address is in Burbank, our membership is actually spread out among Ventura, Los Angeles, Orange, Riverside, San Bernardino counties and we have recently adopted San Diego County as well. As an association, we participate in resource fairs and other community events throughout Southern California several times per year. We also hold Family Fun Days 4-5 times per year, at different locations within our membership area, where families affected with Fragile X can get together and enjoy activities like bowling, picnics, etc. while getting to know each other. In addition to our Family Fun Days, we periodically host informational seminars for our member families and local professionals, bringing in speakers on important topics such as behavioral interventions for children with Fragile X, legal issues including conservatorship and estate planning, genetics, Fragile X related conditions, drug studies, and more. We also helped to establish, and continue to support, a Fragile X clinic at Miller Children's Hospital in Long Beach.

Our board of directors meets quarterly, in Whittier. We encourage you to attend one of our board meetings; if interested, please email us at info@fraxsocal.org for more details.

Fraxsocal.org has been serving the Southern California Fragile X community online since 1998.

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