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Focus on Rare Disease: Decoding genomes, unlocking therapies

Broad Institute of MIT and Harvard

Thursday, February 28, 2019 from 3:00 PM to 6:00 PM (EST)

Focus on Rare Disease: Decoding genomes, unlocking...

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Focus on Rare Disease Feb 28, 2019 Free  

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Event Details

Focus on Rare Disease: Decoding genomes, unlocking therapies

Fourth annual event showcasing rare disease research

 

Thursday, February 28
3:00 ‒ 5:00 pm

Auditorium

Broad Institute of MIT and Harvard

415 Main Street, Cambridge

 

Reception in the DNAtrium lobby to follow.

Open to the Broad community and the general public. All are encouraged to register.

 

 

 

Agenda:


Welcome

Anna Greka, Broad Institute, Brigham and Women’s Hospital, Harvard Medical School

 

Beyond the Diagnosis: Rare disease awareness and advocacy through art

Suzanne Scott, Beyond the Diagnosis

 

From a child's fatal diagnosis to tailor-made treatment in one year

Timothy Yu, Boston Children’s Hospital, Harvard Medical School

Julia Vitarello, Mila's Miracle Foundation

 

Precision medicine for rare disease

Matt Might, University of Alabama

 

Q&A panel

Moderated by Anna Greka, chair of Focus on Rare Disease

 

If you can’t attend in person, watch the livestream at broad.io/watchraredisease


 
 
Beyond the Diagnosis

Broad Institute is proud to host the Beyond the Diagnosis art exhibit for a fourth consecutive year. For 2019 the exhibit will be installed in the Stanley Building lobby, 75 Ames Street, from Friday, February 1 to Monday, April 1.


It takes an average of eight years to identify a diagnosis for a patient with a rare disease, and for many, few treatment options exist. One route to improve the lives of those suffering, is through research, to better understand these diseases and create new ways to diagnose and treat them.


The Beyond the Diagnosis art exhibit features portraits of patients suffering from rare diseases. Painted and donated by accomplished artists, the exhibit travels to medical schools, hospitals, and research centers across the globe to encourage those in the biomedical community to look “beyond the diagnosis” and focus on the people involved — particularly patients and their families.


Beyond the Diagnosis is a non-profit advocacy organization that believes art can not only leave a powerful and lasting visual imprint but also create a unique connection for the viewer.

Have questions about Focus on Rare Disease: Decoding genomes, unlocking therapies? Contact Broad Institute of MIT and Harvard

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When & Where


Broad Institute of MIT and Harvard, Monadnock Conference Room
415 Main Street
Cambridge, MA 02142

Thursday, February 28, 2019 from 3:00 PM to 6:00 PM (EST)


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